Child and Adolescent Health Measurement Initiative, Oregon Health & Science University, Portland, OR, USA.
Pediatrics. 2013 Sep;132(3):445-53. doi: 10.1542/peds.2013-0383. Epub 2013 Aug 19.
Latino-white disparities in age at autism spectrum disorder (ASD) diagnosis may be modified by primary care pediatrician (PCP) practices and beliefs. The objectives of this study were to assess ASD and developmental screening practices, attitudes toward ASD identification in Latino children, and barriers to ASD identification for Latino children, in a sample of 267 California PCPs.
In mail-based PCP survey, we assessed rates of bilingual general developmental and ASD screening, perceptions of parent ASD knowledge in Latino and white families, reports of difficulty assessing for ASDs in Latino and white children, and perceptions of barriers to early ASD identification for Latinos.
Although 81% of PCPs offered some form of developmental screening, 29% of PCPs offered Spanish ASD screening per American Academy of Pediatrics guidelines, and only 10% offered both Spanish general developmental and Spanish ASD screening per American Academy of Pediatrics guidelines. Most PCPs thought that Latino (English and Spanish primary family language) parents were less knowledgeable about ASDs than white parents. PCPs had more difficulty assessing ASD risk for Latino children with Spanish primary family language than for white children, even when the PCP conducted recommended ASD screening or had >25% Latino patients. The most frequent barrier to ASD identification in Latinos was access to developmental specialists.
Multiple factors in the primary care setting may contribute to delayed ASD identification for Latinos. Promoting language-appropriate screening, disseminating culturally appropriate ASD materials to Latino families, improving the specialist workforce, and providing PCP support in screening and referral of Latino children may be important ways to reduce racial and ethnic differences in care.
拉丁裔和白人在自闭症谱系障碍(ASD)诊断年龄上的差异可能受到初级保健儿科医生(PCP)的实践和信念的影响。本研究的目的是评估 267 名加利福尼亚州 PCP 中 ASD 和发育筛查的实践、拉丁裔儿童中 ASD 识别的态度以及拉丁裔儿童 ASD 识别的障碍。
在基于邮件的 PCP 调查中,我们评估了双语一般发育和 ASD 筛查的比率、拉丁裔和白人家庭中父母 ASD 知识的看法、在拉丁裔和白人儿童中评估 ASD 的困难报告,以及对拉丁裔早期 ASD 识别的障碍的看法。
尽管 81%的 PCP 提供了某种形式的发育筛查,但只有 29%的 PCP 根据美国儿科学会的指南提供西班牙语 ASD 筛查,只有 10%的 PCP 根据美国儿科学会的指南提供西班牙语一般发育和西班牙语 ASD 筛查。大多数 PCP 认为拉丁裔(英语和西班牙语主要家庭语言)父母比白人父母对 ASD 的了解更少。PCP 评估有西班牙语主要家庭语言的拉丁裔儿童的 ASD 风险的难度大于评估白人儿童的难度,即使 PCP 进行了推荐的 ASD 筛查或有超过 25%的拉丁裔患者。拉丁裔儿童 ASD 识别的最常见障碍是获得发育专家的机会。
初级保健环境中的多个因素可能导致拉丁裔儿童的 ASD 识别延迟。促进适合语言的筛查、向拉丁裔家庭传播文化上适当的 ASD 材料、改善专家劳动力、并在筛查和转介拉丁裔儿童方面为 PCP 提供支持,可能是减少种族和族裔差异的重要途径。