基层医疗服务提供者在实际工作中对遗传学的亲身经历。
Primary care providers' lived experiences of genetics in practice.
作者信息
Harding Brittany, Webber Colleen, Ruhland Lucia, Dalgarno Nancy, Armour Christine M, Birtwhistle Richard, Brown Glenn, Carroll June C, Flavin Michael, Phillips Susan, MacKenzie Jennifer J
机构信息
Office of Health Sciences Education, Queen's University, Botterell Hall, Room 217, Kingston, Ontario, K7L 2N6, Canada.
Queen's University, 99 University Avenue, Kingston, Ontario, K7L 3N6, Canada.
出版信息
J Community Genet. 2019 Jan;10(1):85-93. doi: 10.1007/s12687-018-0364-6. Epub 2018 Apr 26.
Abstract
To effectively translate genetic advances into practice, engagement of primary care providers (PCPs) is essential. Using a qualitative, phenomenological methodology, we analyzed key informant interviews and focus groups designed to explore perspectives of urban and rural PCPs. PCPs endorsed a responsibility to integrate genetics into their practices and expected advances in genetic medicine to expand. However, PCPs reported limited knowledge and difficulties accessing resources, experts, and continuing education. Rural practitioners' additional concerns included cost, distance, and poor patient engagement. PCPs' perspectives are crucial to develop relevant educational and systems-based interventions to further expand genetic medicine in primary care.
摘要
为了有效地将基因研究进展转化为实际应用，基层医疗服务提供者（PCP）的参与至关重要。我们采用定性的现象学方法，分析了关键信息提供者访谈和焦点小组讨论，旨在探究城乡基层医疗服务提供者的观点。基层医疗服务提供者认可将遗传学融入其医疗实践的责任，并期望基因医学取得更多进展。然而，基层医疗服务提供者表示他们知识有限，在获取资源、专家和继续教育方面存在困难。农村从业者还担心成本、距离和患者参与度低等问题。基层医疗服务提供者的观点对于制定相关教育和基于系统的干预措施以进一步扩大基层医疗中的基因医学至关重要。
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