Alexander Angela, Arnold Terry Lynn, Bishnoi Sandra, Ballinger Caroline, Shaitelman Simona F, Schaverien Mark V, Cohen Lorenzo, Dev Mary, Ueno Naoto T
Department of Breast Medical Oncology, The University of Texas MD Anderson Cancer Center, Houston TX.
Morgan Welch Inflammatory Breast Cancer Research Program and Clinic, The University of Texas MD Anderson Cancer Center, Houston TX.
J Cancer. 2018 Apr 6;9(8):1430-1436. doi: 10.7150/jca.21281. eCollection 2018.
In February 2017, the Morgan Welch Inflammatory Breast Cancer (IBC) Research Program and Clinic hosted a scientific conference in Houston to commemorate the tenth anniversary of the opening of the first IBC-dedicated clinic in the world. Attendees included basic science researchers, clinicians who treat IBC, as well as patients and their caregivers. Several US-based and international IBC-focused nonprofit organizations were also represented. In this third paper from the conference, we report on the breakout session regarding survivorship and advocacy issues related to IBC, sharing an overview of the educational content presented and discussions regarding the future of IBC advocacy. Panelists focused on lymphedema research and clinical solutions, integrative medicine, and social work, with time provided for questions in small groups. IBC nonprofits that are leading advocacy efforts were introduced, and ways to become involved in these initiatives were discussed. Priorities for future advocacy and clinical care needs were also highlighted. In addition to summarizing these topics, we provide a suggested integrated IBC-specific plan of care that could be provided to the patient at the beginning of care and referred to throughout treatment and follow-up.
2017年2月，摩根·韦尔奇炎性乳腺癌（IBC）研究项目与诊所于休斯顿举办了一场科学会议，以纪念世界上第一家IBC专科诊所开业十周年。与会者包括基础科学研究人员、治疗IBC的临床医生，以及患者及其护理人员。几家美国本土和专注于IBC的国际非营利组织也派代表出席。在本次会议的第三篇论文中，我们报告了关于IBC生存及宣传问题的分组会议情况，分享了所呈现的教育内容概述以及关于IBC宣传未来发展的讨论。小组成员聚焦于淋巴水肿研究与临床解决方案、整合医学以及社会工作，并留出时间进行小组提问。会上介绍了引领宣传工作的IBC非营利组织，并讨论了参与这些倡议的方式。还强调了未来宣传工作的重点以及临床护理需求。除了总结这些主题外，我们还提供了一份建议的针对IBC的综合护理计划，该计划可在护理开始时提供给患者，并在整个治疗及随访过程中参考。
