调查已婚成年人对遗传健康风险的共同应对及感知到的歧视。
Investigating Married Adults' Communal Coping with Genetic Health Risk and Perceived Discrimination.
作者信息
Smith Rachel A, Sillars Alan, Chesnut Ryan P, Zhu Xun
机构信息
The Pennsylvania State University.
University of Montana.
出版信息
Commun Monogr. 2018;85(2):181-202. doi: 10.1080/03637751.2017.1404618. Epub 2017 Nov 24.
Increased genetic testing in personalized medicine presents unique challenges for couples, including managing disease risk and potential discrimination as a couple. This study investigated couples' conflicts and support gaps as they coped with perceived genetic discrimination. We also explored the degree to which communal coping was beneficial in reducing support gaps, and ultimately stress. Dyadic analysis of married adults ( = 266, 133 couples), in which one person had the genetic risk for serious illness, showed that perceived discrimination predicted more frequent conflicts about AATD-related treatment, privacy boundaries, and finances, which, in turn, predicted wider gaps in emotion and esteem support, and greater stress for both spouses. Communal coping predicted lower support gaps for both partners and marginally lower stress.
个性化医疗中基因检测的增加给夫妻带来了独特的挑战，包括应对疾病风险以及作为夫妻可能面临的歧视。本研究调查了夫妻在应对感知到的基因歧视时的冲突和支持差距。我们还探讨了共同应对在减少支持差距以及最终减轻压力方面的有益程度。对已婚成年人（N = 266，133对夫妻）进行的二元分析显示，其中一人有患重病的基因风险，感知到的歧视预示着与α1抗胰蛋白酶缺乏症（AATD）相关治疗、隐私界限和财务方面更频繁的冲突，而这些冲突反过来又预示着情感和自尊支持方面更大的差距，以及夫妻双方更大的压力。共同应对预示着双方的支持差距更小，压力略有减轻。
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