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多发性硬化症的医疗保健组织。

Organization of healthcare in multiple sclerosis.

机构信息

Réseau Rhône-Alpes Sclérose en Plaques, hôpital neurologique Pierre-Wertheimer, hospices civils de Lyon, 69677 Lyon/Bron, France; Centre de neurologie de La Sauvegarde, clinique de La Sauvegarde, 25, avenue des Sources, 69009 Lyon, France.

出版信息

Rev Neurol (Paris). 2018 Jun;174(6):471-474. doi: 10.1016/j.neurol.2018.03.011. Epub 2018 May 4.

Abstract

The organization of healthcare for patients with multiple sclerosis (MS) has changed considerably over the past 15 years, with the creation of health networks providing a new impetus towards better coordination of healthcare through a multidisciplinary approach, and improvement of educational training for both patients and healthcare professionals. In this context, therapeutic educational programs (TEPs) for patients have placed patients at the center of their own care pathway, thereby changing the doctor-patient relationship. Today, TEPs cover the various needs of patients in their everyday lives, whether they are medical, social or psychological. However, the arrival of a wide range of new medications, the complexity of therapeutic decisions and management of risk increase the need for organized expertise via centers of resources and competencies (CRCs) for MS, approved since 2016 as part of the French National Neurodegenerative Diseases Plan (NDDP). This NDDP 2014-2019 provides an incentive to change the organization of healthcare for MS patients by adapting it according to regional specificities and resources. Whatever the chosen system of organization, it should allow for a good well-coordinated multidisciplinary care pathway that is easily accessed by patients.

摘要

过去 15 年来,多发性硬化症(MS)患者的医疗保健组织发生了重大变化,通过创建医疗保健网络,通过多学科方法为更好地协调医疗保健提供了新的动力,并提高了患者和医疗保健专业人员的教育培训水平。在这种情况下,针对患者的治疗教育计划(TEP)将患者置于其自身护理路径的中心,从而改变了医患关系。如今,TEP 涵盖了患者日常生活中的各种需求,包括医疗、社会或心理需求。然而,由于广泛的新药物的出现、治疗决策的复杂性以及风险的管理,因此需要通过多发性硬化症资源和能力中心(CRC)来组织专业知识,这些 CRC 自 2016 年以来一直被批准为法国国家神经退行性疾病计划(NDDP)的一部分。该 2014-2019 年 NDDP 鼓励根据区域特点和资源来改变多发性硬化症患者的医疗保健组织,以适应这种变化。无论选择哪种组织系统,它都应该允许建立一个良好的、协调良好的多学科护理路径,以便患者能够轻松获得。

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