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专业人员在促进独立生活中的作用:自我倡导者和一线管理人员的观点。

The role of professionals in promoting independent living: Perspectives of self-advocates and front-line managers.

作者信息

Pallisera Maria, Vilà Montserrat, Fullana Judit, Díaz-Garolera Gemma, Puyalto Carolina, Valls Maria-Josep

机构信息

Institute of Educational Research, University of Girona, Girona, Spain.

University of Lleida, Lleida, Spain.

出版信息

J Appl Res Intellect Disabil. 2018 Nov;31(6):1103-1112. doi: 10.1111/jar.12470. Epub 2018 May 15.

Abstract

BACKGROUND

Support from professionals plays an important role in helping people with intellectual disabilities to live an independent life. This research aims to analyse the role played by support professionals based on the perceptions of the professionals and self-advocates with intellectual disabilities. The research was conducted in Catalonia (Spain).

METHOD

A total of 33 interviews were conducted with front-line managers and 10 focus groups with 72 self-advocates. These were recorded and transcribed, and then analysed using thematic content analysis.

RESULTS

Self-advocates particularly value professionals' interpersonal skills and emotional support. Front-line managers and self-advocates highlight training actions aimed at enhancing autonomy in the home and propose fostering natural supports and increasing the involvement of people with disabilities.

CONCLUSIONS

Making progress in the rights of people with intellectual disabilities to an independent life requires requires transforming the support model, promoting decision making among people with intellectual disabilities, and strengthening interpersonal skills linked to emotional support in the training of professionals.

摘要

背景

专业人员的支持在帮助智障人士过上独立生活方面发挥着重要作用。本研究旨在根据专业人员和智障自我倡导者的看法,分析支持专业人员所起的作用。该研究在加泰罗尼亚(西班牙)进行。

方法

共对一线管理人员进行了33次访谈,并与72名自我倡导者进行了10次焦点小组访谈。对这些访谈进行了录音和转录,然后采用主题内容分析法进行分析。

结果

自我倡导者特别重视专业人员的人际交往能力和情感支持。一线管理人员和自我倡导者强调旨在增强家庭自主性的培训行动,并提议培养自然支持并增加残疾人的参与度。

结论

要在智障人士独立生活权利方面取得进展,需要转变支持模式,促进智障人士决策,并在专业人员培训中加强与情感支持相关的人际交往能力。

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