Department of Research Informatics, Children's Hospital Colorado, Aurora, Colorado, United States.
Department of Pediatrics and Department of Biomedical and Health Informatics, Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, United States.
Appl Clin Inform. 2018 Apr;9(2):366-376. doi: 10.1055/s-0038-1651496. Epub 2018 May 23.
Electronic health record (EHR)-based registries allow for robust data to be derived directly from the patient clinical record and can provide important information about processes of care delivery and patient health outcomes.
A data dictionary, and subsequent data model, were developed describing EHR data sources to include all processes of care within the emergency department (ED). ED visit data were deidentified and XML files were created and submitted to a central data coordinating center for inclusion in the registry. Automated data quality control occurred prior to submission through an application created for this project. Data quality reports were created for manual data quality review.
The Pediatric Emergency Care Applied Research Network (PECARN) Registry, representing four hospital systems and seven EDs, demonstrates that ED data from disparate health systems and EHR vendors can be harmonized for use in a single registry with a common data model. The current PECARN Registry represents data from 2,019,461 pediatric ED visits, 894,503 distinct patients, more than 12.5 million narrative reports, and 12,469,754 laboratory tests and continues to accrue data monthly.
The Registry is a robust harmonized clinical registry that includes data from diverse patients, sites, and EHR vendors derived via data extraction, deidentification, and secure submission to a central data coordinating center. The data provided may be used for benchmarking, clinical quality improvement, and comparative effectiveness research.
电子健康记录 (EHR) 登记系统允许直接从患者的临床记录中获取强大的数据，并且可以提供有关护理提供过程和患者健康结果的重要信息。
制定了一个数据字典，以及随后的数据模型，用于描述包括急诊科 (ED) 内所有护理过程的 EHR 数据源。ED 就诊数据经过去标识化处理，创建了 XML 文件，并提交给中央数据协调中心，以纳入该登记系统。通过为该项目创建的应用程序，在提交之前自动进行数据质量控制。创建数据质量报告，以进行手动数据质量审查。
代表四个医疗系统和七个 ED 的儿科急诊护理应用研究网络 (PECARN) 登记系统表明，来自不同医疗系统和 EHR 供应商的 ED 数据可以通过使用通用数据模型进行协调，以便在单个登记系统中使用。目前的 PECARN 登记系统代表了来自 2019461 次儿科 ED 就诊、894503 名不同患者、超过 1250 万份叙述性报告和 12469754 次实验室测试的数据，并且每月仍在不断增加数据。
该登记系统是一个强大的协调临床登记系统，包括来自不同患者、地点和 EHR 供应商的数据，这些数据是通过数据提取、去标识化和安全提交到中央数据协调中心获得的。提供的数据可用于基准测试、临床质量改进和比较效果研究。
