Giunti Guido, Guisado Fernández Estefanía, Dorronzoro Zubiete Enrique, Rivera Romero Octavio
Salumedia Tecnologias, Seville, Spain.
University of Oulu, Oulu, Finland.
JMIR Mhealth Uhealth. 2018 May 23;6(5):e10512. doi: 10.2196/10512.
Multiple sclerosis (MS) is a non-curable chronic inflammatory disease of the central nervous system that affects more than 2 million people worldwide. MS-related symptoms impact negatively on the quality of life of persons with MS, who need to be active in the management of their health. mHealth apps could support these patient groups by offering useful tools, providing reliable information, and monitoring symptoms. A previous study from this group identified needs, barriers, and facilitators for the use of mHealth solutions among persons with MS. It is unknown how commercially available health apps meet these needs.
The main objective of this review was to assess how the features present in MS apps meet the reported needs of persons with MS.
We followed a combination of scoping review methodology and systematic assessment of features and content of mHealth apps. A search strategy was defined for the two most popular app stores (Google Play and Apple App Store) to identify relevant apps. Reviewers independently conducted a screening process to filter apps according to the selection criteria. Interrater reliability was assessed through the Fleiss-Cohen coefficient (k=.885). Data from the included MS apps were extracted and explored according to classification criteria.
An initial total of 581 potentially relevant apps was found. After removing duplicates and applying inclusion and exclusion criteria, 30 unique apps were included in the study. A similar number of apps was found in both stores. The majority of the apps dealt with disease management and disease and treatment information. Most apps were developed by small and medium-sized enterprises, followed by pharmaceutical companies. Patient education and personal data management were among the most frequently included features in these apps. Energy management and remote monitoring were often not present in MS apps. Very few contained gamification elements.
Currently available MS apps fail to meet the needs and demands of persons with MS. There is a need for health professionals, researchers, and industry partners to collaborate in the design of mHealth solutions for persons with MS to increase adoption and engagement.
多发性硬化症(MS)是一种无法治愈的中枢神经系统慢性炎症性疾病,全球有超过200万人受其影响。与MS相关的症状对MS患者的生活质量产生负面影响,这些患者需要积极参与自身健康管理。移动健康(mHealth)应用程序可以通过提供有用工具、提供可靠信息和监测症状来支持这些患者群体。该研究团队之前的一项研究确定了MS患者使用mHealth解决方案的需求、障碍和促进因素。尚不清楚市面上的健康应用程序如何满足这些需求。
本综述的主要目的是评估MS应用程序中的功能如何满足MS患者报告的需求。
我们采用了范围综述方法与对mHealth应用程序的功能和内容进行系统评估相结合的方法。为两个最受欢迎的应用商店(谷歌Play和苹果App Store)定义了搜索策略,以识别相关应用程序。评审人员独立进行筛选过程,根据选择标准过滤应用程序。通过Fleiss-Cohen系数评估评分者间信度(k = 0.885)。根据分类标准提取并探索纳入的MS应用程序的数据。
初步共发现581个潜在相关应用程序。在去除重复项并应用纳入和排除标准后,30个独特的应用程序被纳入研究。在两个商店中发现的应用程序数量相似。大多数应用程序涉及疾病管理以及疾病和治疗信息。大多数应用程序是由中小企业开发的,其次是制药公司。患者教育和个人数据管理是这些应用程序中最常包含的功能。能量管理和远程监测在MS应用程序中通常不存在。很少有应用程序包含游戏化元素。
目前可用的MS应用程序未能满足MS患者的需求。卫生专业人员、研究人员和行业合作伙伴需要合作设计针对MS患者的mHealth解决方案,以提高采用率和参与度。