Sharma Arpita, Sharma Jagannath Dev, Kataki Amal Chandra, Barman Debanjana, Lahon Ranjan, Deka Barsha Roy, Misra Chinmoy, Kalita Manoj
Computer Programmer, Population Based Cancer Registry, Guwahati, Assam, India.
Professor and Head, Department of Pathology and Principal Investigator, Population Based Cancer Registry, Guwahati, Assam, India.
Indian J Cancer. 2017 Jul-Sep;54(3):560-565. doi: 10.4103/ijc.IJC_372_17.
The global burden of cancer incidence and mortality are rising continuously worldwide. As per the GLOBOCAN 2012 estimates, about 14.1 million cancer cases and 8.2 million cancer deaths occurred and 32.6 million people living with cancer (within 5 years of diagnosis) in 2012 worldwide. Reliable data on the magnitude and the pattern of cancer are essential for monitoring the health of the community, assessing the performance of the health care system. Cancer registries should pay great attention to quality of their data. The completeness of cancer registry data- the extent to which all of the incident cancers occurring in the population are included in the registry database- is an extremely important attribute of a cancer registry. There are mainly four aspects influencing the quality of data namely, comparability, completeness, validity and timeliness.
Data regarding incidence and mortality with methods of diagnosis for individual years were obtained from the National Cancer Registry Program database of the Indian Council of Medical Research for 2009 to 2014 periods and recalculated for combined years (2009-2014).
In males in 2009-11, 77.1% were microscopically confirmed cases which are improved in the later years and for the year 2012-2014, it is 81.4%. In females also the percentage of microscopically confirmed cases were increased from 80.2% to 82.9%. An improvement in mortality to incidence ratio was observed over the years. MI ratio in males was improved to 32.9%. for the year 2012-14 as compared to 28.6% for the year 2009-11 while in female MI ratio is also increased from 18.8% to 21.8% over the period from 2009-11 to 2012-14. Whereas DCO was decreased from 12% to 10.7% in males and 7.3% to 6.6% in females respectively from the period 2009-11 to 2012-14.
Although there is a slight improvement in data quality till date, there is an enormous scope for population based cancer registry Guwahati to improve the data quality.
全球癌症发病率和死亡率的负担在世界范围内持续上升。根据2012年全球癌症统计（GLOBOCAN）估计，2012年全球约有1410万例癌症病例和820万例癌症死亡病例，且有3260万人在确诊后5年内患有癌症。关于癌症规模和模式的可靠数据对于监测社区健康、评估医疗保健系统的绩效至关重要。癌症登记处应高度重视其数据质量。癌症登记数据的完整性——即登记数据库中包含人群中所有新发癌症病例的程度——是癌症登记处的一个极其重要的属性。主要有四个方面影响数据质量，即可比性、完整性、有效性和及时性。
从印度医学研究理事会国家癌症登记计划数据库中获取2009年至2014年各年份的发病率、死亡率及诊断方法的数据，并对合并年份（2009 - 2014年）进行重新计算。
在2009 - 2011年的男性中，77.1%为显微镜确诊病例，在随后几年有所改善，2012 - 2014年为81.4%。女性显微镜确诊病例的百分比也从80.2%增加到82.9%。多年来观察到死亡率与发病率之比有所改善。男性死亡率与发病率之比在2012 - 2014年提高到32.9%，而2009 - 2011年为28.6%，女性死亡率与发病率之比在2009 - 2011年至2012 - 2014年期间也从18.8%增加到21.8%。从2009 - 2011年到2012 - 2014年，男性的无法确诊病例（DCO）从12%降至10.7%，女性从7.3%降至6.6%。
尽管迄今为止数据质量略有改善，但基于古瓦哈蒂人群的癌症登记处仍有很大空间来提高数据质量。
