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小儿喉软化症的声门上成形术:综述与家长评价

Supraglottoplasty in children with laryngomalacia: A review and parents' appraisal.

作者信息

Ribeiro Joana, Júlio Sara, Dias Cláudia, Santos Margarida, Spratley Jorge

机构信息

Department of Surgery and Physiology/Otorhinolaryngology, University of Porto Faculty of Medicine, Portugal, Alameda Professor Hernâni Monteiro, 4200-319 Porto, Portugal.

Department of Surgery and Physiology/Otorhinolaryngology, University of Porto Faculty of Medicine, Portugal, Alameda Professor Hernâni Monteiro, 4200-319 Porto, Portugal; Department of Otorhinolaryngology, S. João Hospital Center, EPE, Porto, Portugal, Alameda Professor Hernâni Monteiro, 4200-319 Porto, Portugal.

出版信息

Am J Otolaryngol. 2018 Sep-Oct;39(5):613-617. doi: 10.1016/j.amjoto.2018.05.007. Epub 2018 May 17.

Abstract

PURPOSE

To assess the parents' perspective concerning the children's clinical picture before and after supraglottoplasty for the treatment of laryngomalacia (LM).

MATERIALS AND METHODS

Retrospective study in 110 children diagnosed with LM followed at the Pediatric Otorhinolaryngology outpatient clinics of S. João Hospital Center, between 2008 and 2016. Children who underwent supraglottoplasty were reviewed in terms of demographics, symptoms, comorbidities, treatment and follow-up. Parents were interviewed and filled out a structured questionnaire designed to evaluate their perception of the child's clinical picture and their degree of comfort before and after surgery.

RESULTS

Thirty-one children (28,2%) underwent supraglottoplasty at a median age of 6 months-old. Twelve patients had one or more medical comorbidities. Stridor was present in all children on the pre-operative period and resolved in 92,3% of the cases after supraglottoplasty; shortness of breath persisted in 3,8% in contrast to the previous 57,7%; and feeding difficulties remained in 15,4% children against the 65,4% before the procedure. Failure in thriving was also a pre-operative complaint, that recovered as reported by parents in all children after supraglottoplasty. No surgical complications were reported, and the median hospital stay was two days. In a 0 to 10 points scale, the median level of the parents' comfort with their child's clinical picture before supraglottoplasty was one point which was significantly worse than the mean level of ten points after surgery (p < 0.001).

CONCLUSIONS

In severe cases, LM can have a strong negative impact on family dynamics and functioning. In selected cases, supraglottoplasty can be a safe and effective treatment option which is associated with a high degree of parental satisfaction.

摘要

目的

评估家长对儿童声门上成形术治疗喉软化症(LM)前后临床症状的看法。

材料与方法

对2008年至2016年间在圣若昂医院中心儿科耳鼻喉科门诊随访的110例诊断为LM的儿童进行回顾性研究。对接受声门上成形术的儿童进行人口统计学、症状、合并症、治疗及随访情况的评估。对家长进行访谈,并填写一份结构化问卷,以评估他们对孩子术前和术后临床症状的认知以及舒适度。

结果

31名儿童(28.2%)接受了声门上成形术,中位年龄为6个月。12例患者有一种或多种内科合并症。所有儿童术前均有喘鸣,声门上成形术后92.3%的病例喘鸣症状消失;呼吸急促持续存在的比例从之前的57.7%降至3.8%;喂养困难仍存在于15.4%的儿童中,术前这一比例为65.4%。生长发育不良也是术前的一个问题,家长报告称声门上成形术后所有儿童的这一问题均得到改善。未报告手术并发症,中位住院时间为2天。在0至10分的量表中,家长对孩子术前临床症状的舒适度中位数为1分,明显低于术后的平均10分水平(p<0.001)。

结论

在严重病例中,LM可对家庭关系和功能产生强烈负面影响。在某些病例中,声门上成形术可能是一种安全有效的治疗选择,家长满意度较高。

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