Ehn Mattias, Wahlqvist Moa, Danermark Berth, Dahlström Örjan, Möller Claes
Audiological Research Centre, Örebro University Hospital, Sweden.
Linneus HEAD centre, The Swedish Institute for Disability Research, Örebro University, Sweden.
Work. 2018;60(2):209-220. doi: 10.3233/WOR-182731.
Research has demonstrated that persons with Usher syndrome type 1 (USH1) have significantly poorer physical and psychological health compared to a reference group.
To explore the relation between work, health, social trust, and financial situation in USH1 compared to a reference group.
Sixty-six persons (18-65 y) from the Swedish Usher database received a questionnaire and 47 were included, 23 working and 24 non-working. The reference group comprised 3,049 working and 198 non-working persons.
The Swedish Health on Equal Terms questionnaire was used and statistical analysis with multiple logistic regression was conducted.
The USH1 non-work group had a higher Odds ratio (95% CI) in poor psychological and physical health, social trust, and financial situation compared to the USH1 work group and reference groups. Age, gender, hearing, and vision impairment did not explain the differences. The relation between the USH1 work and non-work groups showed the same pattern as the reference groups, but the magnitude of problems was significantly higher.
Both disability and unemployment increased the risk of poor health, social trust and financial situation in persons with USH1, but having an employment seemed to counteract the risks related to disability.
研究表明，与对照组相比，1型Usher综合征（USH1）患者的身心健康状况明显较差。
探讨USH1患者与对照组相比，工作、健康、社会信任和财务状况之间的关系。
来自瑞典Usher数据库的66名年龄在18至65岁之间的人收到了一份问卷，其中47人被纳入研究，23人有工作，24人无工作。对照组包括3049名有工作的人和198名无工作的人。
使用瑞典平等健康问卷，并进行多元逻辑回归统计分析。
与USH1工作组和对照组相比，USH1无工作组在心理和身体健康、社会信任和财务状况方面的比值比（95%可信区间）更高。年龄、性别、听力和视力障碍并不能解释这些差异。USH1工作组和无工作组之间的关系与对照组呈现相同模式，但问题的严重程度明显更高。
残疾和失业都会增加USH1患者健康状况不佳、社会信任度低和财务状况差的风险，但就业似乎可以抵消与残疾相关的风险。
