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聋盲人、沟通、独立与孤立。

Deafblind people, communication, independence, and isolation.

作者信息

Hersh Marion

机构信息

Biomedical Engineering, University of Glasgow, Glasgow G12 8LT, UK.

出版信息

J Deaf Stud Deaf Educ. 2013 Oct;18(4):446-63. doi: 10.1093/deafed/ent022. Epub 2013 Jun 7.

DOI:10.1093/deafed/ent022
PMID:23749484
Abstract

This paper discusses issues related to communication, independence, and isolation for an understudied group of deaf people who also have visual impairments. The discussion is based on the experiences of 28 deafblind people in 6 different countries, obtained from interviews that were carried out as part of a larger research project on travel issues. However, the similarities in experiences between countries were stronger than the differences. In particular, barriers to communication and inadequate support, with resulting problems of isolation and depression, were found in all the countries. Equally, deafblind people in all the countries were interested in being involved in and contributing to society and supporting other people, particularly through organizations of blind and deafblind people. This runs counter to the tendency to present deafblind and other disabled people purely as recipients of support rather than also as active participants in society. However, there were some differences in the support available in the different countries.

摘要

本文探讨了一类较少被研究的既失聪又有视力障碍的聋人群体在沟通、独立和孤立方面的相关问题。该讨论基于对来自6个不同国家的28名聋盲人士的经历,这些经历来自于作为一个关于出行问题的大型研究项目一部分而进行的访谈。然而,各国之间经历的相似性强于差异性。特别是,在所有国家都发现了沟通障碍和支持不足的问题,以及由此导致的孤立和抑郁问题。同样,所有国家的聋盲人士都有兴趣参与社会并为社会做出贡献,支持他人,特别是通过盲人和聋盲人士组织。这与将聋盲人士和其他残疾人仅仅视为支持接受者而非社会积极参与者的倾向背道而驰。然而,不同国家可获得的支持存在一些差异。

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