Department of Emergency Medicine, Springfield, MA.
Institute for Healthcare Delivery and Population Science, Springfield, MA.
Acad Emerg Med. 2018 Oct;25(10):1118-1128. doi: 10.1111/acem.13499. Epub 2018 Jul 19.
As shared decision making (SDM) has received increased attention as a method to improve the patient-centeredness of emergency department (ED) care, we sought to determine patients' desired level of involvement in medical decisions and their perceptions of potential barriers and facilitators to SDM in the ED.
We surveyed a cross-sectional sample of adult ED patients at three academic medical centers across the United States. The survey included 32 items regarding patient involvement in medical decisions including a modified Control Preference Scale and questions about barriers and facilitators to SDM in the ED. Items were developed and refined based on prior literature and qualitative interviews with ED patients. Research assistants administered the survey in person.
Of 797 patients approached, 661 (83%) agreed to participate. Participants were 52% female, 45% white, and 30% Hispanic. The majority of respondents (85%-92%, depending on decision type) expressed a desire for some degree of involvement in decision making in the ED, while 8% to 15% preferred to leave decision making to their physician alone. Ninety-eight percent wanted to be involved with decisions when "something serious is going on." The majority of patients (94%) indicated that self-efficacy was not a barrier to SDM in the ED. However, most patients (55%) reported a tendency to defer to the physician's decision making during an ED visit, with about half reporting they would wait for a physician to ask them to be involved.
We found that the majority of ED patients in our large, diverse sample wanted to be involved in medical decisions, especially in the case of a "serious" medical problem, and felt that they had the ability to do so. Nevertheless, many patients were unlikely to actively seek involvement and defaulted to allowing the physician to make decisions during the ED visit. After fully explaining the consequences of a decision, clinicians should make an effort to explicitly ascertain patients' desired level of involvement in decision making.
随着作为提高急诊科(ED)以患者为中心的护理方法的共享决策(SDM)受到越来越多的关注,我们试图确定患者对参与医疗决策的期望程度以及他们对 ED 中 SDM 的潜在障碍和促进因素的看法。
我们对美国三家学术医疗中心的成年 ED 患者进行了横断面样本调查。该调查包括 32 个项目,涉及患者对医疗决策的参与程度,包括修改后的控制偏好量表和 ED 中 SDM 的障碍和促进因素问题。根据先前的文献和与 ED 患者的定性访谈,开发和完善了项目。研究助理亲自进行了调查。
在接触的 797 名患者中,有 661 名(83%)同意参与。参与者中 52%为女性,45%为白人,30%为西班牙裔。大多数受访者(取决于决策类型,85%-92%)表示希望在 ED 中对决策有一定程度的参与,而 8%-15%的人则希望将决策留给医生独自决定。98%的人希望在“出现严重情况”时参与决策。大多数患者(94%)表示自我效能不是 ED 中 SDM 的障碍。但是,大多数患者(55%)表示在 ED 就诊期间倾向于听从医生的决策,大约一半的患者表示他们会等待医生要求他们参与。
在我们的大型、多样化样本中,我们发现大多数 ED 患者希望参与医疗决策,尤其是在出现“严重”医疗问题的情况下,并且他们认为自己有能力这样做。然而,许多患者不太可能主动寻求参与,并且在 ED 就诊期间默认让医生做出决定。在充分解释决策后果后,临床医生应努力明确确定患者对决策参与的期望程度。