National Center for Child Health and Development, Tokyo, Japan.
Kobe University Graduate School of Medicine, Kobe, Hyogo, Japan.
J Pain Symptom Manage. 2018 Oct;56(4):582-587. doi: 10.1016/j.jpainsymman.2018.06.005. Epub 2018 Jun 15.
According to the International Observatory on End of Life Care, the level of pediatric palliative care in Japan is Level 2 (capacity building) and the current status of palliative care for children in Japan has not been clarified.
The objective of the study was to clarify the availability and utilization of specialist palliative care services among children with life-threatening conditions in Japan.
A questionnaire was administered to assess the availability of specialist palliative care services among children with life-threatening conditions. All 427 certified regional cancer centers having hospital-based adult palliative care teams, 15 certified children's cancer centers having pediatric palliative care teams, and 368 medical institutions having a certified palliative care unit were surveyed.
Fifteen to twenty-one percent of adult palliative care teams and more than 90% of pediatric palliative care teams had experience providing palliative care to children with cancer. By contrast, only 2%-3% of adult palliative care teams and 15% of pediatric palliative care teams had experience providing care for the noncancer population. An estimated 12% of children with cancer in Japan used hospital-based palliative care teams in 2015. Eight children used a palliative care unit in 2015, and of those, seven (88%) had a solid tumor. An estimated 1.3% of children with cancer who died in Japan used a palliative care unit.
An estimated 12% of children with cancer in Japan used hospital-based palliative care teams and an estimated 1.3% of children with cancer who died in Japan used a palliative care unit in 2015.
根据国际生命末期关怀观察站的数据，日本的儿科姑息治疗水平为 2 级（能力建设），目前尚未明确日本儿童姑息治疗的现状。
本研究旨在阐明日本有生命危险的儿童获得专科姑息治疗服务的情况和利用情况。
采用问卷调查评估有生命危险的儿童获得专科姑息治疗服务的情况。对所有 427 家拥有成人姑息治疗团队的认证区域癌症中心、15 家拥有儿科姑息治疗团队的认证儿童癌症中心和 368 家拥有认证姑息治疗病房的医疗机构进行了调查。
21%的成人姑息治疗团队和超过 90%的儿科姑息治疗团队有过为癌症儿童提供姑息治疗的经验。相比之下，只有 2%-3%的成人姑息治疗团队和 15%的儿科姑息治疗团队有过为非癌症人群提供护理的经验。2015 年，日本约有 12%的癌症儿童使用了基于医院的姑息治疗团队。2015 年有 8 名儿童使用了姑息治疗病房，其中 7 名（88%）患有实体瘤。估计 2015 年在日本死亡的癌症儿童中有 1.3%使用了姑息治疗病房。
2015 年，日本约有 12%的癌症儿童使用了基于医院的姑息治疗团队，估计有 1.3%的癌症儿童在日本死亡时使用了姑息治疗病房。
