UCL Eastman Dental Institute, University College London, London, UK; College of Dentistry, King Saud University, Riyadh, Saudi Arabia.
UCL Eastman Dental Institute, University College London, London, UK.
Oral Oncol. 2018 Jul;82:69-74. doi: 10.1016/j.oraloncology.2018.05.003. Epub 2018 May 17.
The numbers of individuals with oral cancer are increasing. This cancer is preceded by oral epithelial dysplasia (OED). There remains no detailed study of the online information presently available for patients with OED or indeed what information such patients may require to be appropriately informed regarding their condition. Hence, the aim of the present study is to assess the patient-oriented web content with respect to OED.
The first 100 websites yielded from nine searches performed using different search terms and engines were considered. These were assessed for content, quality (DISCERN instrument, Journal of the American Medical Association benchmarks, and Health on Net seal) and readability (Flesch Reading Ease Score and Flesch-Kincaid Grade Level).
There was a general scarcity of OED content across the identified websites. Information about authors, sources used to compile the publication, treatment, and shared decision were limited or absent. Only 6% and 27% of the websites achieved all the four JAMA benchmarks and HON seal, respectively. The average readability level was at 10th grade (US schools), which far exceeds the recommended levels of written health information.
At present patients seeking information on OED are likely to have difficulty in finding reliable information from the Web about this disorder and its possible impact upon their life. Further work is thus required to develop a web-based resource regarding OED that addresses the shortfalls demonstrated by the current study.
口腔癌患者人数正在增加。这种癌症之前是口腔上皮异型增生（OED）。目前，对于 OED 患者的在线信息，或者实际上患者需要哪些信息才能对自己的病情有适当的了解，还没有详细的研究。因此，本研究旨在评估针对 OED 的面向患者的网络内容。
考虑了使用不同搜索词和引擎进行的九次搜索中产生的前 100 个网站。对这些网站的内容、质量（DISCERN 工具、《美国医学会杂志》基准和健康在线认证）和可读性（弗莱什阅读舒适度得分和弗莱什-金凯德年级水平）进行了评估。
在所确定的网站中，OED 内容普遍匮乏。关于作者、用于编制出版物的来源、治疗和共同决策的信息有限或缺失。只有 6%和 27%的网站分别达到了《美国医学会杂志》的所有四个基准和 HON 认证。平均可读性水平为 10 年级（美国学校），远远超过了推荐的书面健康信息水平。
目前，寻求 OED 信息的患者可能难以从网络上找到关于这种疾病及其对生活可能产生的影响的可靠信息。因此，需要进一步努力开发一个关于 OED 的基于网络的资源，以解决当前研究中显示的不足之处。
