Kreutzer Emma Pauline, Sauer Sandra, Kriegsmann Mark, Staemmler Henrike, Egerer Gerlinde, Kriegsmann Katharina
Department of Hematology, Oncology and Rheumatology, University Hospital Heidelberg, 69120 Heidelberg, Germany.
Institute of Pathology, University Hospital Heidelberg, 69120 Heidelberg, Germany.
Cancers (Basel). 2021 Sep 7;13(18):4508. doi: 10.3390/cancers13184508.
Online information gathering can increase patients' engagement in decision-making. The quality of online resources available for monoclonal gammopathy of undetermined significance (MGUS) was evaluated.
900 websites from Google, Bing, Yahoo, and 150 YouTube videos were assessed.
The websites did not differ regarding their search rank or between the search engines. The median time since last update was 24 months. The 86 unique websites showed a medium to poor general quality (JAMA score 3/4, only 8.1% websites with a valid HON certificate). The patient- (user-) focused quality was poor (sum DISCERN score 27/80 points). The reading level was difficult (11th US school grade). The content level was very low (13/50 points). 12.8% of websites contained misleading/wrong facts. Websites provided by scientific/governmental organizations had a higher content level. For the 61 unique videos, the median time since upload was 34 months. The videos showed a medium general quality (HON Foundation score). The patient- (user-) focused quality was poor (sum DISCERN score 24 points). The content level was very low (6 points).
MGUS-relevant online sources showed a low quality that was provided on a high reading level. Incorporation of quality indices and regular review of online content is warranted.
在线信息收集可提高患者参与决策的程度。对意义未明的单克隆丙种球蛋白病（MGUS）的在线资源质量进行了评估。
评估了来自谷歌、必应、雅虎的900个网站以及150个YouTube视频。
各网站在搜索排名方面或搜索引擎之间并无差异。上次更新以来的中位时间为24个月。86个独立网站的总体质量中等偏下（《美国医学会杂志》评分：3/4，仅有8.1%的网站拥有有效的健康在线基金会（HON）证书）。以患者（用户）为中心的质量较差（DISCERN总分27/80分）。阅读难度较大（相当于美国学校11年级水平）。内容水平非常低（13/50分）。12.8%的网站包含误导性/错误信息。科学/政府组织提供的网站内容水平较高。对于61个独立视频，上传以来的中位时间为34个月。这些视频的总体质量中等（健康在线基金会评分）。以患者（用户）为中心的质量较差（DISCERN总分24分）。内容水平非常低（6分）。
与MGUS相关的在线资源质量较低，且阅读难度较大。有必要纳入质量指标并定期审查在线内容。
