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调查复发性白血病患儿母亲的生活质量与宗教应对方式之间的关系。

Investigating the relationship between the quality of life and religious coping in mothers of children with recurrence leukemia.

作者信息

Khanjari Sedigheh, Damghanifar Marjan, Haqqani Hamid

机构信息

Deptartment of Pediatric Nursing, Nursing Care Research Center, School of Nursing and Midwifery, Iran University of Medical Sciences, Tehran, Iran.

MS in Pediatric Nursing, School of Nursing and Midwifery, University of Medical Sciences, Tehran, Iran.

出版信息

J Family Med Prim Care. 2018 Jan-Feb;7(1):213-219. doi: 10.4103/jfmpc.jfmpc_236_17.

DOI:10.4103/jfmpc.jfmpc_236_17
PMID:29915762
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5958572/
Abstract

BACKGROUND

Leukemia is a life-threatening chronic disease for children. The recurrence of the disease causes tension and reduces the quality of life for the family, especially for mothers. Religion is an important humanitarian aspect of holistic care that can be very effective in determining the health level of the patient and the family members. The present study aims at investigating the role of religious coping (RCOPE) in the quality of life for mothers of children with recurrent leukemia.

METHODS

This is a cross-sectional study of the descriptive-correlational type. Two-hundred mothers with children aging 1-15 years suffering from leukemia were selected using a continuous sampling method. The data were collected using questionnaires eliciting information about personal information, Persian version of the Caregiver Quality of Life Index-Cancer, and RCOPE. The collected data were analyzed in SPSS using descriptive tests and independent samples -test.

RESULTS

The result of examining the relation between life quality and demographic features of mothers showed that education level, income, and occupation had a significant statistical relationship with general quality of life mothers. The results of examining the relationship between quality of life and RCOPE of mothers showed that RCOPE was positively correlated only with the positive coping dimension quality of life ( < 0/001). Negative RCOPE had a significant reverse statistical correlation with general quality of life and all its aspects.

CONCLUSION

The quality of life for the participants in this study was significantly related to RCOPE. Mothers with negative RCOPE faced low scores for quality of life, and religious support can improve their life quality. Further longitudinal studies are required to investigate the effects of establishing support communities.

摘要

背景

白血病是一种危及儿童生命的慢性疾病。该疾病的复发会造成紧张情绪,并降低家庭尤其是母亲的生活质量。宗教是整体护理中一个重要的人文方面,在决定患者及其家庭成员的健康水平方面可能非常有效。本研究旨在调查宗教应对方式(RCOPE)在复发白血病患儿母亲生活质量中的作用。

方法

这是一项描述性关联类型的横断面研究。采用连续抽样方法选取了200名有1至15岁白血病患儿的母亲。通过问卷收集数据,问卷涉及个人信息、波斯语版照顾者生活质量指数 - 癌症以及宗教应对方式。在SPSS中使用描述性测试和独立样本t检验对收集到的数据进行分析。

结果

对母亲生活质量与人口统计学特征之间关系的检验结果表明,教育水平、收入和职业与母亲的总体生活质量存在显著的统计学关系。对母亲生活质量与宗教应对方式之间关系的检验结果表明,宗教应对方式仅与生活质量的积极应对维度呈正相关(P<0.001)。消极宗教应对方式与总体生活质量及其所有方面存在显著的反向统计学相关性。

结论

本研究参与者的生活质量与宗教应对方式显著相关。消极宗教应对方式的母亲生活质量得分较低,宗教支持可以改善她们的生活质量。需要进一步开展纵向研究来调查建立支持社区的效果。

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