Department of Paediatric Gastroenterology, Erasmus MC-Sophia Children's Hospital, Rotterdam, The Netherlands.
Department of Paediatric Gastroenterology, Wilhelmina Children's Hospital, University Medical Center Utrecht, Utrecht, The Netherlands.
Acta Paediatr. 2019 Feb;108(2):333-338. doi: 10.1111/apa.14471. Epub 2018 Jul 10.
It can be difficult for adolescents with inflammatory bowel disease (IBD) to make the transition from paediatric to adult care. We studied the outcomes of this process and defined what constituted a successful transition.
In 2008, 50 adolescents who attended our IBD transition clinic completed IBD-yourself, a self-efficacy questionnaire that we had previously developed and validated. We approached the subjects in 2014, two to six years after they transferred to adult care, and 35 agreed to take part in the current study. The outcome of transition was assessed by our newly developed Transition Yourself Score. In addition, the relationship between self-efficacy and the outcome of the transition was measured.
The mean age of the patients was 21.8 years, and 69% suffered from Crohn's disease. The transition process was successful in 63% of cases, moderately successful in 31% and failed in 6%. A successful transition was associated with effective use of medication and clinical remission at the time of transfer, but could not be predicted by self-efficacy. The Transition Yourself Score will be validated in future studies.
Nearly two-thirds (63%) of the adolescents who attended the IBD transition clinic had a successful transition to adult care.
对于患有炎症性肠病（IBD）的青少年来说，从儿科过渡到成人护理可能会很困难。我们研究了这一过程的结果，并确定了成功过渡的标准。
2008 年，我们的 IBD 过渡诊所的 50 名青少年完成了 IBD-自己，这是我们之前开发和验证的自我效能问卷。2014 年，在他们转至成人护理后 2 至 6 年，我们联系了其中的 35 名，他们同意参与当前的研究。过渡的结果通过我们新开发的过渡自己评分进行评估。此外，还测量了自我效能与过渡结果之间的关系。
患者的平均年龄为 21.8 岁，69%患有克罗恩病。在 63%的病例中，过渡过程是成功的，31%是中等成功的，6%是失败的。成功的过渡与转移时药物的有效使用和临床缓解有关，但不能通过自我效能来预测。过渡自己评分将在未来的研究中得到验证。
参加 IBD 过渡诊所的青少年中，近三分之二（63%）成功过渡到成人护理。
