Department of Dermatology, Erasmus MC Cancer Institute, Rotterdam, the Netherlands.
Department of Public Health, Erasmus MC University Medical Center, Rotterdam, the Netherlands.
Br J Dermatol. 2019 Jan;180(1):122-129. doi: 10.1111/bjd.16900. Epub 2018 Sep 23.
Despite the high and rising incidence rate of keratinocyte cancer (KC) and the importance of incorporating patient values into evidence-based care, few studies have focused on the perspectives of patients with KC.
To identify the needs and preferences of patients with basal cell carcinoma (BCC) and squamous cell carcinoma (SCC) regarding care.
A qualitative study was conducted consisting of three focus groups with patients with BCC and three focus groups with patients with SCC. In total 42 patients participated. In each focus group, the patients' needs and preferences regarding treatment and follow-up were discussed, using a predefined topic list. All sessions were transcribed verbatim and analysed by two researchers.
The following needs and preferences were identified: (i) the need to receive all relevant, tailored information; (ii) a physician who takes you seriously and communicates well; (iii) a short waiting period and the best treatment with direct results; (iv) to be seen by the same physician; a preference for a dermatologist during (v) treatment and (vi) follow-up; (vii) a general need for structured follow-up care and (viii) a full-body skin examination during follow-up. Patients with BCC additionally expressed the need for openness and transparency and wanting to participate in shared decision making.
It is advocated to organize skin cancer care that is better tailored to the needs of patients with KC, providing patient-centred care. This should include investing in the patient-physician relationship, and personalizing the type and form of information and the follow-up schedules. Adding the patient's perspective to current guidelines could facilitate this process.
尽管角化细胞癌 (KC) 的发病率很高且呈上升趋势，并且将患者价值观纳入循证护理非常重要，但很少有研究关注 KC 患者的观点。
确定基底细胞癌 (BCC) 和鳞状细胞癌 (SCC) 患者对护理的需求和偏好。
进行了一项定性研究，包括三个 BCC 患者焦点小组和三个 SCC 患者焦点小组。共有 42 名患者参与。在每个焦点小组中，使用预先确定的主题列表讨论了患者对治疗和随访的需求和偏好。所有会议都逐字记录下来，并由两名研究人员进行分析。
确定了以下需求和偏好：(i) 需要获得所有相关的、量身定制的信息；(ii) 认真对待并善于沟通的医生；(iii) 短的等待期和直接产生最佳治疗效果；(iv) 由同一名医生就诊；在治疗和(v) 随访期间更倾向于看皮肤科医生；(vi) 需要结构化的随访护理；(vii) 在随访期间进行全身皮肤检查。BCC 患者还表示需要开放透明，并希望参与共同决策。
提倡组织更好地满足 KC 患者需求的皮肤癌护理，提供以患者为中心的护理。这应包括投资于医患关系，并个性化信息的类型和形式以及随访计划。将患者的观点添加到当前的指南中可以促进这一过程。
