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患者对原发性黑素瘤或基底细胞癌诊断公告的感知及其对患者生活质量的影响。

Patient Perception of the Diagnosis Announcement and its Impact on Quality of Life of Patients with Primary Melanoma or Basal Cell Carcinoma.

机构信息

Dermatology Department, University Hospital La Timone, Assistance Publique Hôpitaux de Marseille, FR-13385 Marseille, France.

出版信息

Acta Derm Venereol. 2022 May 19;102:adv00717. doi: 10.2340/actadv.v102.2217.

Abstract

An improved understanding of the impact of skin cancer on patients' daily life may optimize disease management. This questionnaire survey of adult patients in real-world settings aimed to assess patient perception of the diagnosis announcement, and the impact of the diagnosis on the patients' professional and personal life. Data from 355 patients with melanoma and 320 patients with basal cell carcinoma (BCC) were analysed. Melanoma significantly impacted the couple, and sexual relationships, as well as family and social life, and reduced the patient's libido more significantly than did BCC (all p < 0.05). Melanoma and BCC significantly impacted the patients' professional and personal lives. The word "cancer" used for a BCC announcement has a high anxiety-producing meaning for the patient. The announcement of each skin cancer should be made during a dedicated consultation, with more time devoted to the patient and with specific empathy, in order to improve reassurance of the patient.

摘要

对皮肤癌如何影响患者日常生活有更深入的了解,可能有助于优化疾病管理。本项针对真实环境中成年患者的问卷调查旨在评估患者对诊断通知的感知,以及诊断对其职业和个人生活的影响。共分析了 355 例黑色素瘤患者和 320 例基底细胞癌(BCC)患者的数据。黑色素瘤显著影响夫妻关系和性关系,以及家庭和社会生活,并且比 BCC 更显著降低患者的性欲(均 p<0.05)。黑色素瘤和 BCC 显著影响患者的职业和个人生活。用于 BCC 通知的“癌症”一词对患者来说具有很高的产生焦虑的意义。应在专门的咨询中告知每位皮肤癌患者,给予患者更多时间并表现出特别的同理心,以增强对患者的安抚效果。

相似文献

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Common skin cancers.常见皮肤癌。
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Melanoma and nonmelanoma skin cancer.黑色素瘤和非黑色素瘤皮肤癌。
Curr Opin Oncol. 1991 Apr;3(2):420-32. doi: 10.1097/00001622-199104000-00024.

本文引用的文献

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Factors contributing to cancer worry in the skin cancer population.导致皮肤癌患者产生癌症担忧的因素。
J Am Acad Dermatol. 2020 Aug;83(2):626-628. doi: 10.1016/j.jaad.2019.09.068. Epub 2019 Oct 1.
9
Self-reported quality of life after skin cancer in young adults.青年成人皮肤癌患者自我报告的生活质量
J Dermatolog Treat. 2015;26(4):357-60. doi: 10.3109/09546634.2014.991671. Epub 2014 Dec 30.

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