Rogalski Emily J, Khayum Becky
Cognitive Neurology and Alzheimer's Disease Center, Northwestern University Feinberg School of Medicine, Chicago, Illinois.
Department of Psychiatry and Behavioral Sciences, Northwestern University Feinberg School of Medicine, Chicago, Illinois.
Semin Speech Lang. 2018 Jul;39(3):284-296. doi: 10.1055/s-0038-1660786. Epub 2018 Jun 22.
Primary progressive aphasia (PPA) is a clinical neurodegenerative dementia syndrome characterized by deficits in spoken and written word retrieval, word usage, and/or word comprehension. Currently, there are no effective treatments to reverse or halt the underlying disease process; however, speech-language therapy may be helpful. The Communication Bridge Care Model was developed to address the unique communication and quality of life needs of individuals living with PPA. The core elements include person-centered care with dyadic instruction for disease education, and counseling, along with tailored levels of impairment- and compensatory-based communication strategy training. Our multicomponent approach incorporates guidance from the Life Participation Approach for Aphasia, including client-directed assessment and interventions that aim to maximize functional communication and participation in desired life activities. The direct and indirect use of technology is integrated into our tailored model of care to facilitate achievement of the client's functional goals. Here, we describe how to practically apply the Communication Bridge Care Model across treatment settings, including case examples from the Communication Bridge research study. This approach to care provides an opportunity to maximize communication effectiveness and quality of life for individuals living with PPA throughout the course of disease.
原发性进行性失语(PPA)是一种临床神经退行性痴呆综合征,其特征是口语和书面语言检索、词汇使用及/或词汇理解方面存在缺陷。目前,尚无有效的治疗方法来逆转或阻止潜在的疾病进程;然而,言语治疗可能会有所帮助。沟通桥梁护理模式的开发旨在满足PPA患者独特的沟通和生活质量需求。其核心要素包括以患者为中心的护理,采用二元指导进行疾病教育和咨询,以及基于损伤和补偿的沟通策略训练的定制水平。我们的多组分方法纳入了失语症生活参与方法的指导,包括以患者为导向的评估和干预,旨在最大限度地提高功能性沟通和参与期望的生活活动。技术的直接和间接使用被整合到我们定制的护理模式中,以促进实现患者的功能目标。在此,我们描述如何在不同治疗环境中实际应用沟通桥梁护理模式,包括来自沟通桥梁研究的案例。这种护理方法为在疾病全过程中最大限度地提高PPA患者的沟通有效性和生活质量提供了机会。