纽约市中文肝癌移民的护理障碍：焦点小组研究。
Barriers to Care in Chinese Immigrants with Hepatocellular Carcinoma: A Focus Group Study in New York City.
机构信息
Division of Surgical Oncology, Icahn School of Medicine at Mount Sinai, 19 E 98th St., Ste 7A, New York, NY, 10029, USA.
Memorial Sloan Kettering Cancer Center, New York, NY, USA.
出版信息
J Community Health. 2018 Dec;43(6):1161-1171. doi: 10.1007/s10900-018-0536-7.
The incidence of hepatocellular carcinoma (HCC) is rising sharply in the United States and deaths from HCC have increased at the highest rate of all cancers. Though Asians have the highest incidence of HCC of all ethnicities in the US, racial/ethnic minorities, including Asians, have worse survival from HCC. We sought to identify barriers to care in treatment of HCC among affected individuals in the NYC Chinese immigrant community. We held focus groups with Chinese immigrant patients in NYC with HCC. 29 individuals participated in the focus groups. We analyzed focus group data using grounded theory methodology. Barriers to care identified included insurance, money, time, language, residency status, and stigma. The impact of provider bias and culture were also discussed. Knowledge gathering with minority patients with HCC is essential for us to fully comprehend the barriers to healthcare experienced by this community. Future policy and intervention efforts must be founded in this reality.
美国肝细胞癌 (HCC) 的发病率正在急剧上升，HCC 导致的死亡人数是所有癌症中增长最快的。尽管亚洲人是美国所有种族中 HCC 发病率最高的人群，但包括亚洲人在内的少数族裔，其 HCC 的生存率更差。我们试图确定在纽约市中国移民社区中，受 HCC 影响的个体在治疗过程中面临的护理障碍。我们在纽约市举行了 HCC 中国移民患者的焦点小组。29 人参加了焦点小组。我们使用扎根理论方法分析了焦点小组数据。确定的护理障碍包括保险、金钱、时间、语言、居住身份和耻辱感。还讨论了提供者偏见和文化的影响。了解 HCC 少数族裔患者的情况对于我们全面了解该社区所经历的医疗保健障碍至关重要。未来的政策和干预措施必须立足于这一现实。
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