Department of Family and Community Medicine, Michigan State University, 909 Fee Road, Room B201, East Lansing, MI, 49923, USA.
Comprehensive Hemophilia and Thrombosis Center, Dartmouth-Hitchcock Medical Center, 1 Medical Center Drive, Lebanon, NH, 03756, USA.
Matern Child Health J. 2018 Sep;22(9):1240-1246. doi: 10.1007/s10995-018-2545-7.
Purpose Hemophilia Treatment Centers (HTCs) provide integrated and comprehensive services to individuals affected with rare bleeding disorders, such as hemophilia and Von Willebrand disease. Through the 340 Drug Pricing Program, HTCs may use pharmacy income to support clinical staff and patient services. The objective of this study was to describe the impact of the 340B program funding on services and support provided by HTCs to persons affected by rare bleeding disorders. Description Federally designated comprehensive HTCs with established 340B programs were invited to participate in a mailed survey in 2014. Participants were requested to report on 340B program-funded staff and services in the calendar year 2013. Assessment The 31 of 37 HTCs responding served over 10,000 individuals, or one-third of the national HTC patient population. The majority of responding HTCs reported that 340B program income supported over 90% of staff such as nurses, social workers, and physical therapists. Conclusion The results from this survey of 31 centers with established programs demonstrates the HTCs' reliance on 340B program support for vital comprehensive services, that are otherwise non-reimbursable, and highlights the importance of the 340B program in sustaining the high quality of care and in increasing access for a geographically dispersed, medically vulnerable population.
血友病治疗中心(HTCs)为受罕见出血性疾病(如血友病和血管性血友病)影响的个体提供综合全面的服务。通过 340 药品定价计划,HTCs 可以利用药房收入来支持临床工作人员和患者服务。本研究的目的是描述 340B 计划资金对 HTCs 为受罕见出血性疾病影响的人群提供的服务和支持的影响。
邀请具有既定 340B 计划的联邦指定综合 HTCs 参与 2014 年的邮寄调查。要求参与者报告 2013 年日历年度 340B 计划资助的工作人员和服务情况。
37 个 HTCs 中有 31 个做出回应,为超过 10000 人提供服务,占全国 HTC 患者群体的三分之一。大多数回应的 HTCs 报告称,340B 计划收入支持超过 90%的工作人员,如护士、社会工作者和物理治疗师。
这项针对 31 个有既定计划的中心的调查结果表明,HTCs 依赖 340B 计划的支持来提供重要的综合服务,否则这些服务将无法得到报销,并强调了 340B 计划在维持高质量护理和增加地理上分散的、医疗上脆弱的人群的可及性方面的重要性。