Instituto de Bioética, Universidade Católica Portuguesa, Rua Diogo Botelho, 1327 4169-005, Porto, Portugal.
UNESCO Chair in Bioethics Instituto de Bioética, Universidade Católica Portuguesa, Porto, Portugal.
BMC Palliat Care. 2018 Jun 29;17(1):89. doi: 10.1186/s12904-018-0344-y.
Education sessions about palliative care among teenagers are uncommon in developed countries. However, very little is known either about the impact of this type of intervention or about how this age-group perceives its impact. The purpose of this study was therefore to (i) implement an education program about palliative care among teenagers and (ii) to investigate the impact of the program on the participants.
An action-research study was conducted at a local community parish in Portugal in November 2015. An education programme was purposively built about palliative care, using active educational strategies adapted for teenagers. Quantitative and qualitative techniques and instruments were used for data collection: questionnaire; reflective diaries; interviews and written testimony. The program had three stages: preparation; intervention; and evaluation. Qualitative data were analysed using thematic content analysis; quantitative data were analysed descriptively.
69 people (47 teenagers) participated in the education program. Findings show that the education program contributed to creating awareness about palliative care. Both the teenagers and other participants assessed the education program positively. At the end of the program, teenagers had a constructive message about palliative care.
The education-intervention contributed to create awareness about palliative care among the participant teenagers, who ended the program with a positive message about palliative care. Based on our findings, the following policy implications can be drawn: (1) Further research is needed to evaluate the effect of education programs about palliative care among younger age groups (teenagers and children), particularly in relation to the changing of attitudes toward palliative care. (2) Education about palliative care should be promoted to local communities, involving all age groups, to foster involvement, participation and empowerment. (3) Compassionate communities should be promoted to enhance the health and wellbeing of all citizens at the end of their life.
在发达国家，针对青少年的姑息治疗教育课程并不常见。然而，对于这种干预方式的影响，或者该年龄段的人如何看待这种影响，我们知之甚少。因此，本研究的目的是：（i）为青少年实施姑息治疗教育计划；（ii）调查该计划对参与者的影响。
2015 年 11 月，在葡萄牙的一个当地社区堂区进行了一项行动研究。使用为青少年量身定制的积极教育策略，精心设计了关于姑息治疗的教育计划。采用定量和定性技术和工具收集数据：问卷、反思日记、访谈和书面证词。该计划分为三个阶段：准备阶段、干预阶段和评估阶段。采用主题内容分析法分析定性数据；采用描述性方法分析定量数据。
共有 69 人（47 名青少年）参加了教育计划。研究结果表明，该教育计划有助于提高对姑息治疗的认识。青少年和其他参与者都对教育计划给予了积极评价。在计划结束时，青少年对姑息治疗有了一个建设性的信息。
教育干预有助于提高参与者青少年对姑息治疗的认识，他们在结束该计划时对姑息治疗有了积极的信息。根据我们的发现，可以得出以下政策影响：（1）需要进一步研究，评估针对青少年和儿童等更年轻年龄组的姑息治疗教育计划的效果，特别是在改变对姑息治疗的态度方面。（2）应向当地社区推广姑息治疗教育，涉及所有年龄组，以促进参与、参与和赋权。（3）应推广富有同情心的社区，以增强所有公民在生命末期的健康和幸福感。
