Department of Health Sciences, College of Health Professions, Towson University, 8000 York Road - CHP Dean's Office, Towson, MD, 21252, USA.
J Autism Dev Disord. 2018 Nov;48(11):3912-3925. doi: 10.1007/s10803-018-3673-z.
In the United States, young adults with an autism spectrum disorder (ASD) lose federally mandated supports upon leaving high school. To arrange adult services, families must prove their young adult's eligibility and find competent service providers. National-level statistics regarding receipt of appropriate adult services are discouraging, but little is known about families' lived experience with regard to services. Therefore, qualitative interviews focused on the search for and satisfaction with adult services were conducted with parents of young adults with ASD, then analyzed using the constant comparative method. Emergent themes included Bureaucracy and Fighting for Access, Staffing Issues, Program Suitability, and "Doing It Yourself." The need to improve service access and delivery is discussed, as are issues facing specific ASD subgroups.
在美国，患有自闭症谱系障碍 (ASD) 的年轻人在高中毕业后将失去联邦授权的支持。为了安排成人服务，家庭必须证明其年轻成年人符合条件，并找到有能力的服务提供者。关于获得适当成人服务的国家级统计数据令人沮丧，但对于家庭在服务方面的实际经验却知之甚少。因此，对 ASD 年轻成年人的父母进行了重点关注寻找和满足成人服务的定性访谈，然后使用常数比较法进行了分析。出现的主题包括官僚主义和争取准入、人员配备问题、计划适用性以及“自己动手”。讨论了改善服务获取和提供的必要性，以及特定 ASD 亚组面临的问题。
