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接受姑息治疗的癌症患儿的生存体验。

Existential experience of children with cancer under palliative care.

作者信息

França Jael Rúbia Figueiredo de Sá, Costa Solange de Fátima Geraldo da, Lopes Maria Emília Limeira, Nóbrega Maria Mirian Lima da, Batista Patrícia Serpa de Souza, Oliveira Regina Célia de

机构信息

Universidade Federal da Paraíba. João Pessoa, Paraíba, Brazil.

Universidade de Pernambuco. Recife, Pernambuco, Brazil.

出版信息

Rev Bras Enferm. 2018;71(suppl 3):1320-1327. doi: 10.1590/0034-7167-2016-0493.

DOI:10.1590/0034-7167-2016-0493
PMID:29972530
Abstract

OBJECTIVE

To understand the existential experience of children with cancer under Palliative Care from the Humanistic Nursing Theory's point of view.

METHOD

This is a field and qualitative research, in which eleven children participated, supported by the Support Centre for Children with Cancer in Paraíba State. To collect data it was used the Story Drawing Procedure. The data were qualitatively analyzed based on Humanistic Nursing Theory.

RESULTS

From the analysis of the empirical study's subject, the following thematic categories have emerged: children experiencing fear, sadness, anguish and insecurity in the face of their diagnosis and children experiencing fear of their family falling apart because of the possibility of dying.

CONCLUSION

It is fundamental the participation of nurses in the Palliative Care to the children with cancer in order to strengthen the trust between the children and the professional to have the relationship of dialogue as central axis.

摘要

目的

从人文护理理论的角度了解接受姑息治疗的癌症患儿的生存体验。

方法

这是一项实地定性研究,在帕拉伊巴州癌症患儿支持中心的支持下,有11名儿童参与。采用故事绘画程序收集数据。基于人文护理理论对数据进行定性分析。

结果

通过对实证研究对象的分析,出现了以下主题类别:面对诊断时,儿童经历恐惧、悲伤、痛苦和不安全感;以及儿童因可能死亡而担心家庭破裂。

结论

护士参与对癌症患儿的姑息治疗至关重要,以便加强儿童与专业人员之间的信任,将对话关系作为核心轴。

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Existential experience of children with cancer under palliative care.接受姑息治疗的癌症患儿的生存体验。
Rev Bras Enferm. 2018;71(suppl 3):1320-1327. doi: 10.1590/0034-7167-2016-0493.
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The importance of communication in pediatric oncology palliative care: focus on Humanistic Nursing Theory.沟通在儿科肿瘤姑息治疗中的重要性:聚焦人文护理理论。
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How do professionals assess the quality of life of children with advanced cancer receiving palliative care, and what are their recommendations for improvement?专业人员如何评估接受姑息治疗的晚期癌症儿童的生活质量,以及他们对改善的建议是什么?
BMC Palliat Care. 2018 May 8;17(1):71. doi: 10.1186/s12904-018-0328-y.
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'Out of the sighs'--an existential-phenomenological method of clinical supervision: the contribution to palliative care.“走出叹息”——一种临床督导的存在主义-现象学方法:对姑息治疗的贡献
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Acting with dedication and expertise: Relatives' experience of nurses' provision of care in a palliative unit.敬业且专业地履行职责:亲属对姑息治疗病房护士护理工作的体验
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