Demoro Cleide Carolina da Silva, Fontes Cassiana Mendes Bertoncello, Trettene Armando Dos Santos, Cianciarullo Tamara Iwanow, Lazarini Ilza Marques
Universidade de São Paulo. Bauru, São Paulo, Brazil.
Universidade Estadual Paulista Júlio de Mesquita Filho, Botucatu Medical School. Botucatu, São Paulo, Brazil.
Rev Bras Enferm. 2018;71(suppl 3):1469-1473. doi: 10.1590/0034-7167-2016-0562.
to report the nurses' experience in relation to the training of caregivers of infants with Isolated Robin Sequence (IRS) for maintaining care after hospital discharge from the perspective of Self-Care Theoretical Framework.
the following categories were considered in this experience report: self-care action, self-care capacity, therapeutic self-care demand, self-care deficit, and nursing system. The nursing system was wholly compensatory and supportive-educative.
caregivers' training by nurses results in the acquisition of technical skills and specific knowledge related to the infant's positioning in elevated ventral decubitus, nasopharyngeal intubation, feeding-facilitating techniques and care with the feeding tube.
the continuity of home care is guaranteed from caregivers' training for the therapeutic demand.
从自我护理理论框架的角度报告护士在培训孤立性罗宾序列征（IRS）婴儿的照顾者以使其在出院后维持护理方面的经验。
本经验报告考虑了以下类别：自我护理行动、自我护理能力、治疗性自我护理需求、自我护理不足和护理系统。护理系统完全是补偿性和支持教育性的。
护士对照顾者的培训使他们获得了与婴儿仰卧位抬高、鼻咽插管、促进喂养技术以及喂养管护理相关的技术技能和特定知识。
通过对照顾者进行培训以满足治疗需求，确保了家庭护理的连续性。
