Marriage & Family Therapy Program, Virginia Tech, 7054 Haycock Road, Falls Church, VA, 22043, USA.
School of Family Life, Brigham Young University, 2086 JFSB, Provo, UT, 84602, USA.
J Autism Dev Disord. 2018 Dec;48(12):4207-4221. doi: 10.1007/s10803-018-3665-z.
The purpose of this study was to interview parents of children with severe or profound intellectual and developmental disabilities to determine the perceived value of support groups and identify recommendations for support group design based on their experiences and feedback. Despite varied experiences with support groups, most parents indicated the value of support groups is in providing a place where parents can feel understood and both share and gather information. Parents recommended support groups be targeted for parents of children with similar disabilities and needs, have flexible structures and qualified leaders, and offer a wide variety of content in various formats. Given parental recommendations for support group design varied, summary recommendations addressing a wide range of preferences are provided.
本研究的目的是采访患有严重或极重度智力和发育障碍儿童的家长，以确定他们对支持小组的看法，并根据他们的经验和反馈确定支持小组设计的建议。尽管支持小组的体验各不相同，但大多数家长表示，支持小组的价值在于为父母提供一个可以让他们感到被理解的地方，让他们可以分享和收集信息。家长们建议支持小组针对具有相似残疾和需求的儿童的家长，支持小组具有灵活的结构和合格的领导，并以各种形式提供各种内容。由于家长对支持小组设计的建议各不相同，因此提供了一些综合性的建议，以满足广泛的偏好。
