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远程活动监测对痴呆患者及其家庭照护者的六个月有效性:一项实验性混合方法研究。

Six-Month Effectiveness of Remote Activity Monitoring for Persons Living With Dementia and Their Family Caregivers: An Experimental Mixed Methods Study.

机构信息

Division of Health Policy & Management, School of Public Health.

Division of Epidemiology & Community Health, School of Public Health.

出版信息

Gerontologist. 2019 Jan 9;59(1):78-89. doi: 10.1093/geront/gny078.

Abstract

BACKGROUND AND OBJECTIVES

This study aimed to evaluate if and how remote activity monitoring (RAM) improves caregiver outcomes for family members providing care for persons living with Alzheimer's disease or a related dementia (ADRD).

RESEARCH DESIGN AND METHODS

We conducted an embedded experimental mixed methods study of 132 persons living with ADRD and their family caregivers (n = 64 randomly assigned to RAM treatment condition). In addition to baseline and 6-month quantitative survey data on context of care, primary objective stressors, resources, self-efficacy/competence, and distress collected from caregivers, 6-month RAM review checklists contained open-ended, qualitative information on perceived acceptability of the technology.

RESULTS

The RAM system did not exert statistically significant effects on caregiving outcomes over a 6-month period. However, qualitative analyses identified several potential moderators of RAM technology effectiveness that were subsequently tested in post-hoc repeated measures analyses of variance. Caregivers who utilized RAM technology and cared for relatives with: (a) less severe cognitive impairment; and (b) difficulty navigating around the home were more likely to indicate statistically significant increases in competence and self-efficacy, respectively.

DISCUSSION AND IMPLICATIONS

We found that the early months spent calibrating and modifying RAM are potentially challenging for families, which may prevent this technology from improving caregiving outcomes during initial months of use. Remote activity monitoring may work optimally for caregivers of persons living with ADRD in specific situations (e.g., earlier stages of dementia; wandering risk), which suggests the need for appropriate needs assessments that can better target such innovations.

摘要

背景与目的

本研究旨在评估远程活动监测(RAM)是否以及如何改善照顾阿尔茨海默病或相关痴呆症(ADRD)患者的家庭成员的护理人员的结果。

研究设计与方法

我们对 132 名患有 ADRD 的患者及其家庭护理人员(n=64 名随机分配至 RAM 治疗组)进行了嵌入式实验性混合方法研究。除了基线和 6 个月的定量调查数据(包括照顾背景、主要压力源、资源、自我效能/能力和护理人员的痛苦)外,6 个月的 RAM 审查清单还包含有关技术可接受性的开放式、定性信息。

结果

在 6 个月的时间内,RAM 系统对照顾结果没有产生统计学上显著的影响。然而,定性分析确定了 RAM 技术有效性的几个潜在调节因素,随后在事后重复测量方差分析中对这些因素进行了测试。使用 RAM 技术并照顾:(a)认知障碍程度较轻;和(b)在家中行动不便的亲属的护理人员更有可能分别在能力和自我效能方面表现出统计学上显著的增加。

讨论与意义

我们发现,在早期校准和修改 RAM 的几个月里,家庭可能会面临挑战,这可能会阻止该技术在最初几个月的使用中改善照顾结果。远程活动监测可能最适合处于特定情况下(例如痴呆症早期阶段;游荡风险)的 ADRD 患者的照顾者,这表明需要进行适当的需求评估,以更好地针对这些创新。

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