Centre for Research in Autism and Education (CRAE), UCL Institute of Education, University College London, London, UK.
Department of Educational Studies, Macquarie University, 29 Wally's Walk, Sydney, 2109, Australia.
J Autism Dev Disord. 2018 Dec;48(12):4287-4292. doi: 10.1007/s10803-018-3664-0.
Although menarche and menstruation are perceived to be overwhelmingly negative events for developmentally-disabled women, women's health issues remain under-researched in autism. Here, we conducted a preliminary investigation of the experiences of post-menarcheal autistic (n = 123) and non-autistic (n = 114) respondents to a brief online survey. Although autistic respondents reported many overlapping issues and experiences with non-autistic respondents, they also highlighted distinct-and sometimes-distressing-issues relating to menstruation, especially a cyclical amplification of autistic-related challenges, including sensory differences and difficulties with regulating emotion and behavior, which had a significant, negative impact on their lives. These initial findings call for systematic research on the potential causes, correlates and consequences of menstrual-related problems in autistic individuals-across the spectrum and the lifespan.
尽管初潮和月经被认为是发育障碍女性的压倒性负面事件,但自闭症女性的健康问题在自闭症研究中仍然很少被关注。在这里,我们对参加简短在线调查的青春期后自闭症(n=123)和非自闭症(n=114)受访者的经历进行了初步调查。尽管自闭症受访者与非自闭症受访者报告了许多重叠的问题和经历,但他们也强调了与月经有关的独特且有时令人痛苦的问题,特别是与自闭症相关挑战的周期性放大,包括感官差异以及情绪和行为调节困难,这对他们的生活产生了重大负面影响。这些初步发现呼吁对自闭症个体(在整个谱系和整个生命周期内)的月经相关问题的潜在原因、相关性和后果进行系统研究。