Kalocsai Csilla, Amaral Andre, Piquette Dominique, Walter Grace, Dev Shelly P, Taylor Paul, Downar James, Gotlib Conn Lesley
Trauma, Emergency and Critical Care Research, Evaluative Clinical Sciences, Sunnybrook Research Institute, Toronto, Canada.
Patient/Client and Family Education, Centre for Mental Health and Addiction, 33 Russell Street, Toronto, Ontario, M5S 3M1, Canada.
BMC Health Serv Res. 2018 Jul 9;18(1):533. doi: 10.1186/s12913-018-3341-1.
Studies in the intensive care unit (ICU) suggest that better communication between families of critically ill patients and healthcare providers is needed; however, most randomized trials targeting interventions to improve communication have failed to achieve family-centered outcomes. We aim to offer a novel analysis of the complexities involved in building positive family-provider relationships in the ICU through the consideration of not only communication but other important aspects of family-provider interactions, including family integration, collaboration, and empowerment. Our goal is to explore family members' perspectives on the enablers and challenges to establishing therapeutic alliance with ICU physicians and nurses.
We used the concept of therapeutic alliance as an organizational and analytic tool to conduct an interview-based qualitative study in a 20-bed adult medical-surgical ICU in an academic hospital in Toronto, Canada. Nineteen family members of critically ill patients who acted as substitute decision-makers and/or regularly interacted with ICU providers were interviewed. Participants were sampled purposefully to ensure maximum variation along predetermined criteria. A hybrid inductive-deductive approach to analysis was used.
Participating family members highlighted the complementary roles and practices of ICU nurses and physicians in building therapeutic alliance. They reported how both provider groups had profession specific and shared contributions to foster family communication, integration, and collaboration, while physicians played a key role in family empowerment. Families' lack of familiarity with ICU personnel and processes, physicians' sporadic availability and use of medical jargon during rounds, however, reinforced long established power differences between lay families and expert physicians and challenged family integration. Family members also identified informal interactions as missed opportunities for relationship-building with physicians. While informal interactions with nurses at the bedside facilitated therapeutic alliance, inconsistent and ad-hoc interactions related to routine decision-making hindered family empowerment.
Multiple opportunities exist to improve family-provider relationships in the ICU. The four dimensions of therapeutic alliance prove analytically useful to highlight those aspects that work well and need improvement, such as in the areas of family integration and empowerment.
重症监护病房(ICU)的研究表明,重症患者家属与医疗服务提供者之间需要更好的沟通;然而,大多数旨在改善沟通的随机试验未能实现以家庭为中心的结果。我们旨在通过不仅考虑沟通,还考虑家庭与提供者互动的其他重要方面,包括家庭融入、协作和赋权,对在ICU建立积极的家庭与提供者关系所涉及的复杂性进行新颖的分析。我们的目标是探讨家庭成员对于与ICU医生和护士建立治疗联盟的促进因素和挑战的看法。
我们将治疗联盟的概念作为一种组织和分析工具,在加拿大多伦多一家学术医院的一个拥有20张床位的成人内科 - 外科ICU中进行了一项基于访谈的定性研究。对19名重症患者的家属进行了访谈,这些家属担任替代决策者和/或经常与ICU提供者互动。有目的地选取参与者,以确保在预定标准上有最大的差异。采用了归纳 - 演绎相结合的分析方法。
参与研究的家庭成员强调了ICU护士和医生在建立治疗联盟中的互补作用和做法。他们报告了两个提供者群体如何在促进家庭沟通、融入和协作方面有各自专业特定的以及共同的贡献,而医生在家庭赋权方面发挥了关键作用。然而,家属对ICU人员和流程缺乏熟悉度、医生查房时偶尔不在场以及使用医学术语,强化了外行家庭与专家医生之间长期存在的权力差异,并对家庭融入构成挑战。家庭成员还将非正式互动视为与医生建立关系的错失机会。虽然在床边与护士的非正式互动促进了治疗联盟,但与常规决策相关的不一致和临时互动阻碍了家庭赋权。
在ICU中有多个改善家庭与提供者关系的机会。治疗联盟的四个维度在分析上被证明有助于突出那些运作良好和需要改进的方面,例如在家庭融入和赋权领域。