a Research Unit of Clinical Nursing, Palliative Medical Department , Bispebjerg and Frederiksberg University Hospital , Copenhagen , Denmark.
b Institute of Public Health, University of Copenhagen , Copenhagen , Denmark.
J Psychosoc Oncol. 2018 Sep-Oct;36(5):557-581. doi: 10.1080/07347332.2018.1460003. Epub 2018 Jul 11.
We tested if a family-and-coping-oriented basic palliative homecare intervention (six visits within 15 weeks) could improve quality-of-life and reduce anxiety and depression of advanced cancer patients and their closest relative, and reduce acute hospital admissions of patients. Fifty-seven families were randomized, but patient enrollment was terminated before reaching target sample due to a low recruitment rate. We found no evidence of effect of the FamCope-intervention, but further investigation of effective methods to support how families cope with advanced cancer at home is needed as levels of distress is as high in relatives as it is in patients. However, duration of interventions to support family-coping may need a considerable time-span to show effect on quality-of-life. We recommend that recruitment is undertaken in close collaboration with the hospital clinics, and that complexity of problems is used as inclusion criterion to decide when a family-coping intervention is needed based on the level of problems and distress in the family.
我们测试了一种以家庭和应对为导向的基本姑息治疗家庭护理干预措施（15 周内进行 6 次访问）是否可以改善晚期癌症患者及其最亲近的亲属的生活质量，减少他们的焦虑和抑郁，并减少患者的急性住院次数。57 个家庭被随机分配，但由于招募率低，在达到目标样本之前提前终止了患者入组。我们没有发现 FamCope 干预措施有效果的证据，但需要进一步研究如何有效地支持家庭在家中应对晚期癌症的方法，因为患者和亲属的痛苦程度一样高。然而，支持家庭应对的干预措施的持续时间可能需要相当长的时间才能对生活质量产生影响。我们建议在与医院诊所密切合作的情况下进行招募，并将问题的复杂性作为纳入标准，根据家庭中问题和痛苦的程度，决定何时需要家庭应对干预。
