Talman Lena, Wilder Jenny, Stier Jonas, Gustafsson Christine
School of Health, Care and Social Welfare (HVV), Mälardalen University, Eskilstuna, Sweden.
School of Education, Culture and Communication (UKK), Mälardalen University, Västerås, Sweden.
J Appl Res Intellect Disabil. 2019 Jan;32(1):143-151. doi: 10.1111/jar.12516. Epub 2018 Jul 11.
Participation is a central aspect of quality of life, and it is indicative of high-quality outcomes for people with intellectual disabilities. However, participation is difficult to achieve for adults with profound intellectual and multiple disabilities.
To describe staff members' perceptions of what participation means for adults with profound intellectual and multiple disabilities.
Using a phenomenographic approach, 27 interviews were analysed resulting in variations in the conditions for participation.
The interviews revealed conditions for participation at individual, staff and organisational levels.
Participation appears to be an un-reflected phenomenon, and several conditions must be met to achieve it. The conditions are experienced being fundamental for adults within the target group to achieve any kind of participation. The staff members and managers' perceptions of participation as conditional can make it more difficult for adults within the target group to achieve the Swedish disability policy goal of participation.
参与是生活质量的核心要素，对于智障人士而言，它预示着高质量的生活成果。然而，对于重度智力和多重残疾的成年人来说，实现参与却并非易事。
描述工作人员对于参与对重度智力和多重残疾成年人意味着什么的看法。
采用现象学方法，对27次访谈进行分析，从而得出参与条件的差异。
访谈揭示了个体、工作人员和组织层面的参与条件。
参与似乎是一种未被深入思考的现象，要实现参与必须满足若干条件。这些条件被认为是目标群体中的成年人实现任何形式参与的基础。工作人员和管理人员将参与视为有条件的看法，可能会使目标群体中的成年人更难实现瑞典残疾政策中的参与目标。
