Gómez-Batiste Xavier, Blay Carles, Broggi Marc Antoni, Lasmarias Cristina, Vila Laura, Amblàs Jordi, Espaulella Joan, Costa Xavier, Martínez-Muñoz Marisa, Robles Bernabé, Quintana Salvador, Bertran Joan, Torralba Francesc, Benito Carmen, Terribas Nuria, Busquets Josep Maria, Constante Carles
1 Chair of Palliative Care, University of Vic/WHO Collaborating Center for Palliative Care Public Health Programs, Catalan Institute of Oncology, Barcelona, Spain.
2 Program for Prevention and Care of Persons With Chronic Conditions, Department of Health, Government of Catalonia, Barcelona, Spain.
J Palliat Care. 2018 Oct;33(4):247-251. doi: 10.1177/0825859718788933. Epub 2018 Jul 13.
Palliative care must be early applied to all types of advanced chronic and life limited prognosis patients, present in all health and social services. Patients' early identification and registry allows introducing palliative care gradually concomitant with other measures. Patients undergo a systematic and integrated care process, meant to improve their life quality, which includes multidimensional assessment of their needs, recognition of their values and preferences for advance care planning purposes, treatments review, family care, and case management. Leaded by the National Department of Health, a program for the early identification of these patients has been implemented in Catalonia (Spain). Although the overall benefits expected, the program has raised some ethical issues. In order to address these challenges, diverse institutions, including bioethics and ethics committees, have elaborated a proposal for the program's advantages. This paper describes the process of evaluation, elaboration of recommendations, and actions done in Catalonia.
姑息治疗必须尽早应用于所有类型的晚期慢性疾病患者以及预后有限的患者,涵盖所有医疗和社会服务领域。对患者进行早期识别和登记,有助于在采取其他措施的同时逐步引入姑息治疗。患者需经历一个系统且综合的护理过程,旨在提高其生活质量,这包括对其需求进行多维度评估、为预先护理计划识别其价值观和偏好、审查治疗方案、家庭护理以及病例管理。在西班牙加泰罗尼亚,由国家卫生部牵头实施了一项针对这些患者的早期识别计划。尽管预期会带来整体益处,但该计划引发了一些伦理问题。为应对这些挑战,包括生物伦理和伦理委员会在内的不同机构已为该计划的优势制定了一项提案。本文描述了加泰罗尼亚的评估过程、建议的制定以及所采取的行动。