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炎症性肠病中的生物制剂——互联网网站信息质量

Biologic agents in inflammatory bowel disease - quality of internet website information.

作者信息

Rofaiel Rymon, Chande Nilesh

机构信息

Department of Medicine, Western University and London Health Sciences Centre, London, Ontario, Canada.

Department of Medicine; Division of Gastroenterology, Western University and London Health Sciences Centre, London, Ontario, Canada.

出版信息

Saudi J Gastroenterol. 2018 Nov-Dec;24(6):336-341. doi: 10.4103/sjg.SJG_55_18.

Abstract

BACKGROUND/AIMS: Many patients currently seek the Internet for health-related information without discerning the quality or bias of the evidence presented. Biologic agents have become the mainstay of therapy in inflammatory bowel disease (IBD), and it is important that patients have access to high-quality information when exploring the various available agents to make informed decisions about their therapy. The primary aim of this study was to evaluate the quality of patient-searched Internet websites that describe the biologic agents used as treatment options for IBD. The secondary aim was to compare the quality of patient-searched with physician-recommended websites and to evaluate any differences.

MATERIALS AND METHODS

The DISCERN model was used to evaluate the quality of the information content of a total of 110 websites of all the biologic agents used in the treatment of IBD from July to September 2017. The first 10 "Google search" hits meeting the inclusion criteria for each agent were included. There were four additional physician-recommended websites that were evaluated for the purpose of the secondary aim of this study.

RESULTS

The mean DISCERN score among all websites combined was 3.21 out of a 5-point scale. The highest scoring website was "ema.europa.eu" at 4.13 whereas the lowest scoring website was "https://www.fda.gov" at 1.97 for Entyvio. There was no significant difference between patient-searched and physician-recommended websites, with a mean total score of 3.21 versus 3.63, respectively (P value of 0.158).

CONCLUSIONS

The combined quality of Internet web-based resources used for each drug was fairly consistent in scoring (intermediate to slightly above average). There was no significant advantage in the overall combined scores of the pooled physician-recommended websites when compared with the patient-searched websites.

摘要

背景/目的:目前许多患者在互联网上搜索健康相关信息,却不辨别所提供证据的质量或偏向性。生物制剂已成为炎症性肠病(IBD)治疗的主要手段,患者在探索各种可用药物以做出明智的治疗决策时,能够获取高质量信息非常重要。本研究的主要目的是评估患者搜索的描述用于IBD治疗选择的生物制剂的互联网网站的质量。次要目的是比较患者搜索的网站与医生推荐的网站的质量,并评估任何差异。

材料与方法

使用DISCERN模型评估2017年7月至9月期间治疗IBD所用的所有生物制剂的总共110个网站的信息内容质量。纳入每个药物符合纳入标准的前10个“谷歌搜索”结果。为了本研究的次要目的,另外评估了4个医生推荐的网站。

结果

所有网站综合的平均DISCERN评分为5分制中的3.21分。得分最高的网站是“ema.europa.eu”,评分为4.13,而针对Entyvio得分最低的网站是“https://www.fda.gov”,评分为1.97。患者搜索的网站与医生推荐的网站之间没有显著差异,平均总分分别为3.21和3.63(P值为0.158)。

结论

用于每种药物的基于互联网的资源的综合质量在评分上相当一致(中等至略高于平均水平)。与患者搜索的网站相比,汇总的医生推荐网站的总体综合得分没有显著优势。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3d7e/6253911/755221702cec/SJG-24-336-g001.jpg

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