Sainsbury David C G, Davies Amy, Wren Yvonne, Southby Lucy, Chadha Ambika, Slator Rona, Stock Nicola Marie
1 Northern & Yorkshire Cleft Lip and Palate Service, Royal Victoria Infirmary, Newcastle upon Tyne, United Kingdom.
2 The Cleft Collective, University of Bristol, Bristol, United Kingdom.
Cleft Palate Craniofac J. 2019 Apr;56(4):502-507. doi: 10.1177/1055665618790174. Epub 2018 Aug 1.
As a growing paradigm of health research, trainee collaboratives can influence clinical practice through the generation of cost-effective multicenter audit and research projects. The aims of the present article are to outline and discuss the establishment of a multidisciplinary collaborative in the context of cleft lip and/or palate (CL/P).
The Cleft Multidisciplinary Collaborative (CMC) was formed in April 2016 under the overarching supervision of the National Institute for Health Research. Membership of the CMC is open to all members of the CL/P multidisciplinary team, who are encouraged to submit ideas for new research projects that will benefit clinical practice.
To date, 48 clinical participants are involved in the CMC. These participants represent all 17 cleft teams from the United Kingdom and encompass a wide range of disciplines. The CMC has undertaken 2 major projects so far. The first involved collection of phenotype data to support a national cohort study. The second, still in progress, is a systematic review investigating factors associated with outcomes for velopharyngeal competence following cleft palate repair.
The concept of a multidisciplinary collaborative in CL/P has been demonstrated through the generation of a United Kingdom-wide network of committed clinicians and researchers and the effective undertaking of 2 large research projects. As the CMC gathers momentum, it hopes to attract funding to support its activities, to promote more involvement from the allied health and nursing professions, to encourage a more ingrained research culture within the CL/P community, and to promote the wider ambition of a global collaborative.
作为健康研究中不断发展的模式，学员合作组织可以通过开展具有成本效益的多中心审计和研究项目来影响临床实践。本文的目的是概述和讨论在唇腭裂（CL/P）背景下建立多学科合作组织的情况。
唇腭裂多学科合作组织（CMC）于2016年4月在英国国家卫生研究院的总体监督下成立。CMC的成员资格向CL/P多学科团队的所有成员开放，鼓励他们提交有益于临床实践的新研究项目的想法。
迄今为止，有48名临床参与者参与了CMC。这些参与者代表了来自英国的所有17个腭裂团队，涵盖了广泛的学科。CMC迄今已开展了2个主要项目。第一个项目涉及收集表型数据以支持一项全国队列研究。第二个项目仍在进行中，是一项系统评价，调查腭裂修复术后腭咽功能相关结局的影响因素。
通过建立一个覆盖全英国的由敬业的临床医生和研究人员组成的网络以及有效开展2个大型研究项目，证明了CL/P多学科合作组织的概念。随着CMC的发展壮大，它希望吸引资金来支持其活动，促进联合健康和护理专业更多的参与，鼓励CL/P社区形成更根深蒂固的研究文化，并推动实现全球合作这一更宏伟的目标。
