Institute of Orthodontics, Faculty of Medicine, University of Coimbra, 3000-075 Coimbra, Portugal.
Coimbra Institute for Clinical and Biomedical Research (iCBR), Area of Environment Genetics and Oncobiology (CIMAGO), Faculty of Medicine, University of Coimbra, 3000-075 Coimbra, Portugal.
Int J Environ Res Public Health. 2022 Aug 26;19(17):10638. doi: 10.3390/ijerph191710638.
The latest Eurocleft study reported several discrepancies in cleft care. Since then, no critical assessment has been performed. This study aimed to better understand the main strengths and inefficiencies of cleft care within Europe. The Google documents platform was used to create an online survey to investigate several aspects, i.e., provider characteristics, patient profile, services offered, and treatment protocols and complications. Descriptive statistics were calculated. The association between categorical variables was performed using Fisher's exact test. The significance level chosen was 0.05. A total of 69 individuals from 23 European countries completed the survey. Centralized care was the preferred system, and the majority of the countries have an association for cleft patients and professionals (53.6%). The largest percentage of patients was seen in the university hospital environment (Fisher's exact test < 0.001). The majority of responders (98.6%) reported that an orthodontist was involved in cleft treatment, and 56.5% of them spend 76-100% of their time treating these patients. Despite cleft care having been reconfigured in Europe, a better consensus among the various centers regarding provider characteristics, services offered, and treatment protocols is still required. There is a need for better coordination between clinicians and national/international regulatory bodies.
最新的 Eurocleft 研究报告指出了腭裂护理中的一些差异。此后，尚未对此进行严格评估。本研究旨在更深入地了解欧洲腭裂护理的主要优势和不足。我们使用 Google 文档平台创建了一个在线调查，以调查几个方面，即提供者特征、患者特征、提供的服务以及治疗方案和并发症。计算了描述性统计数据。使用 Fisher 精确检验对分类变量之间的关联进行了分析。选择的显著性水平为 0.05。共有来自 23 个欧洲国家的 69 人完成了调查。集中式护理是首选系统，大多数国家都有为腭裂患者和专业人员设立的协会（53.6%）。大多数患者在大学医院环境中就诊（Fisher 精确检验 < 0.001）。大多数应答者（98.6%）报告说正畸医生参与了腭裂治疗，其中 56.5%的人花费 76-100%的时间治疗这些患者。尽管欧洲已经对腭裂护理进行了重新配置，但仍需要各个中心之间在提供者特征、提供的服务以及治疗方案方面达成更好的共识。临床医生和国家/国际监管机构之间需要更好的协调。
