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青光眼特异性患者报告结局量表(PROMs)在新加坡背景下的应用:一项定性范围界定研究。

Usage of glaucoma-specific patient-reported outcome measures (PROMs) in the Singapore context: a qualitative scoping exercise.

作者信息

Hee Owen Kim, Thng Zheng-Xian, Zhu Hong-Yuan, Lamoureux Ecosse Luc

机构信息

National Healthcare Group Eye Institute, Tan Tock Seng Hospital, S308433, Singapore, Singapore.

Health Services Research, Singapore Eye Research Institute, Singapore, Singapore.

出版信息

BMC Ophthalmol. 2018 Aug 14;18(1):197. doi: 10.1186/s12886-018-0803-5.

Abstract

BACKGROUND

Despite the increasing emphasis on the role of glaucoma-specific patient-reported outcome measures (PROMs) as relevant outcome measures for the impact of glaucoma and its intervention on patients' daily lives, the feasibility of implementing PROMs in the routine clinical setting in Singapore remains undefined. We aim to evaluate the comprehensibility, acceptability, and relevance of four glaucoma-specific PROMs at healthcare professionals' and patients' level in a Singapore context.

METHODS

Sixteen ophthalmic healthcare professionals and 24 glaucoma patients, with average age 60 years (SD = 15), were invited from a tertiary hospital in Singapore. Semi-structured interviews were conducted to explore participants' perceptions on the content and administration of four glaucoma-specific PROMs - the Glaucoma Quality of Life-15, Glaucoma Symptom Identifier, Independent Mobility Questionnaire and Treatment Satisfaction Survey of Intra-ocular Pressure. Semi-structured interviews were hand transcribed, and analysed thematically. Each participant filled out a feasibility survey at the end of interview.

RESULTS

79% of glaucoma patients and 94% of glaucoma healthcare professionals felt selected PROMs relevant to patients. 63% of glaucoma patients and 50% of healthcare professionals felt that selected PROMs were sufficiently comprehensive for clinical use. 46% of glaucoma patients and 56% of healthcare professionals felt selected PROMs were user-friendly.

CONCLUSIONS

Using PROMs in the Singapore clinical setting receives promising support from both healthcare professionals and patients. The identified potential barriers tailored to Singapore clinical setting will help successful implementation of PROMs into routine clinical care.

摘要

背景

尽管越来越强调青光眼特异性患者报告结局测量指标(PROMs)作为青光眼及其干预措施对患者日常生活影响的相关结局指标,但在新加坡的常规临床环境中实施PROMs的可行性仍不明确。我们旨在评估在新加坡背景下,四种青光眼特异性PROMs在医疗专业人员和患者层面的可理解性、可接受性和相关性。

方法

从新加坡一家三级医院邀请了16名眼科医疗专业人员和24名青光眼患者,平均年龄60岁(标准差=15)。进行了半结构化访谈,以探讨参与者对四种青光眼特异性PROMs(青光眼生活质量-15、青光眼症状识别器、独立移动问卷和眼压治疗满意度调查)的内容和管理的看法。半结构化访谈内容进行了手工转录,并进行了主题分析。每位参与者在访谈结束时填写了一份可行性调查问卷。

结果

79%的青光眼患者和94%的青光眼医疗专业人员认为所选的PROMs与患者相关。63%的青光眼患者和50%的医疗专业人员认为所选的PROMs对临床使用来说足够全面。46%的青光眼患者和56%的医疗专业人员认为所选的PROMs对用户友好。

结论

在新加坡临床环境中使用PROMs得到了医疗专业人员和患者的有力支持。确定的针对新加坡临床环境的潜在障碍将有助于PROMs成功应用于常规临床护理。

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