来自4个专业中心的首批波兰成年常见可变免疫缺陷患者队列：我们提供了护理标准吗？ - Suppr

The first Polish cohort of adult patients with common variable immunodeficiency from 4 specialized centers: do we provide standards of care?

作者信息

Więsik-Szewczyk Ewa, Ziętkiewicz Marcin, Matyja-Bednarczyk Aleksandra, Napiórkowska-Baran Katarzyna, Suchanek Hanna, Jahnz-Różyk Karina

出版信息

Pol Arch Intern Med. 2018 Sep 28;128(9):563-566. doi: 10.20452/pamw.4315. Epub 2018 Aug 16.

DOI:10.20452/pamw.4315

PMID:30113020

Abstract

摘要

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The first Polish cohort of adult patients with common variable immunodeficiency from 4 specialized centers: do we provide standards of care?来自4个专业中心的首批波兰成年常见可变免疫缺陷患者队列：我们提供了护理标准吗？

Pol Arch Intern Med. 2018 Sep 28;128(9):563-566. doi: 10.20452/pamw.4315. Epub 2018 Aug 16.

[Common variable Immunodeficiency syndrome].[普通可变免疫缺陷综合征]

Duodecim. 1997;113(3):209-16.

Common variable immunodeficiency.普通可变免疫缺陷

Allergy Asthma Proc. 2002 Jan-Feb;23(1):53-7.

Primary immunodeficiency: potential benefits of active transition to improved multi-disciplinary care.原发性免疫缺陷：积极转向改善多学科护理的潜在益处。

Pediatr Allergy Immunol. 2009 Jun;20(4):402-3. doi: 10.1111/j.1399-3038.2008.00838.x.

Common variable immunodeficiency syndrome in an adult.一名成人的常见变异型免疫缺陷综合征

Lancet. 2014 Mar 8;383(9920):926. doi: 10.1016/S0140-6736(14)60415-3.

Health care utilization by patients with common variable immune deficiency defined by International Classification of Diseases, Ninth Revision code 279.06.根据国际疾病分类第九版代码279.06定义的常见可变免疫缺陷患者的医疗保健利用情况。

Ann Allergy Asthma Immunol. 2015 Sep;115(3):248-50. doi: 10.1016/j.anai.2015.06.012. Epub 2015 Jul 7.

[CVID (common variable immunodeficiency): heterogeneous clinical manifestation of the commonest symptomatic primary immunodeficiency disease].[普通变异型免疫缺陷病（CVID）：最常见的有症状的原发性免疫缺陷病的异质性临床表现]

Schweiz Med Wochenschr. 2000 Oct 28;130(43):1590-9.

Current perspectives on common variable immunodeficiency (CVID).常见可变免疫缺陷（CVID）的当前观点。

Clin Exp Allergy. 2001 Apr;31(4):536-42. doi: 10.1046/j.1365-2222.2001.01117.x.

Multiple cancers in a patient with common variable immunodeficiency.患有常见可变免疫缺陷的患者出现多种癌症。

Allergol Immunopathol (Madr). 2014 Jan-Feb;42(1):85-7. doi: 10.1016/j.aller.2012.10.003. Epub 2012 Dec 17.

Common variable immunodeficiency presenting with a large abdominal mass.以巨大腹部肿块为表现的常见变异型免疫缺陷病。

J Allergy Clin Immunol. 2005 Jun;115(6):1318-20. doi: 10.1016/j.jaci.2005.02.021.

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Increased Access to Immunoglobulin Replacement Therapy for Patients with Primary Immunodeficiency in Poland Based on Clinical Usage Data of Immunoglobulin G over a 5-Year Period.基于5年期间免疫球蛋白G的临床使用数据，波兰原发性免疫缺陷患者获得免疫球蛋白替代疗法的机会增加。

J Clin Med. 2023 Mar 22;12(6):2431. doi: 10.3390/jcm12062431.

Case report: Cellular therapy for hydroa vacciniforme-like lymphoproliferative disorder in pediatric common variable immunodeficiency with chronic active Epstein-Barr virus infection.病例报告：细胞疗法治疗小儿常见变异型免疫缺陷合并慢性活动性EB病毒感染中的种痘样水疱病样淋巴增殖性疾病

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A multicenter survey on the aspects of everyday life in adult patients with primary antibody deficiencies treated with immunoglobulin G replacement during the COVID-19 pandemic.一项关于 COVID-19 大流行期间接受免疫球蛋白 G 替代治疗的原发性抗体缺陷症成年患者日常生活方面的多中心调查。

Int J Immunopathol Pharmacol. 2021 Jan-Dec;35:20587384211044344. doi: 10.1177/20587384211044344.

Achromobacter xylosoxidans Pneumonia in a Young Child with Chronic Granulomatous Disease-a Case-Based Review.一名患有慢性肉芽肿病幼儿的木糖氧化无色杆菌肺炎——基于病例的综述

J Clin Immunol. 2021 Oct;41(7):1686-1692. doi: 10.1007/s10875-021-01079-3. Epub 2021 Jul 14.

Lessons Learned From the Clinical Presentation of Common Variable Immunodeficiency Disorders: A Systematic Review and Meta-Analysis.从常见可变免疫缺陷疾病的临床表现中吸取的经验教训：系统评价和荟萃分析。

Front Immunol. 2021 Mar 23;12:620709. doi: 10.3389/fimmu.2021.620709. eCollection 2021.

Secondary immunodeficiencies with predominant antibody deficiency: multidisciplinary perspectives of Polish experts.以抗体缺陷为主的继发性免疫缺陷：波兰专家的多学科观点

Cent Eur J Immunol. 2020;45(3):334-341. doi: 10.5114/ceji.2020.101265. Epub 2020 Nov 1.

From infections to autoimmunity: Diagnostic challenges in common variable immunodeficiency.从感染到自身免疫：常见可变免疫缺陷的诊断挑战

World J Clin Cases. 2020 Sep 26;8(18):3942-3955. doi: 10.12998/wjcc.v8.i18.3942.

Facilitated Subcutaneous Immunoglobulin Replacement Therapy in Clinical Practice: A Two Center, Long-Term Retrospective Observation in Adults With Primary Immunodeficiencies.临床中皮下免疫球蛋白输注治疗的实施：对成人原发性免疫缺陷患者的两中心、长期回顾性观察。

Front Immunol. 2020 May 20;11:981. doi: 10.3389/fimmu.2020.00981. eCollection 2020.

Shorter Diagnostic Delay in Polish Adult Patients With Common Variable Immunodeficiency and Symptom Onset After 1999.波兰成年普通可变免疫缺陷患者的诊断延迟时间更短，症状出现于 1999 年后。

Front Immunol. 2020 May 27;11:982. doi: 10.3389/fimmu.2020.00982. eCollection 2020.

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The first Polish cohort of adult patients with common variable immunodeficiency from 4 specialized centers: do we provide standards of care?

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