Singogo Carol, Mweshi Margaret, Rhoda Anthea
Department of Physiotherapy, University of the Western Cape, South Africa.
Department of Physiotherapy, University of Zambia, Zambia.
S Afr J Physiother. 2015 Nov 10;71(1):274. doi: 10.4102/sajp.v71i1.274. eCollection 2015.
Mothers caring for children with disability experience a number of challenges.
The aim of the study was to explore the challenges that mothers who cared for children with cerebral palsy (CP) living in Zambia experienced.
During a qualitative study the experiences of 16 conveniently sampled mothers of children with CP, from the Ndola district in Zambia, were explored by means of interviews. The responses were thematically analysed. All the necessary ethical considerations were upheld.
Mothers experienced social isolation and marital problems, as well as negative attitudes from family, friends, community members and health care professionals. The physical environment created access challenges because of a lack of sidewalks, ramps, functioning lifts and small indoor spaces.
Mothers of children with CP feel socially isolated owing to a lack of support from family, community members, and health care providers. This social isolation was exacerbated by attitudes of others towards the mothers; it was felt that mothers were responsible for their children's condition. Mothers also experienced marital problems as a result of having a child with CP.
照顾残疾儿童的母亲面临诸多挑战。
本研究旨在探讨赞比亚照顾脑瘫（CP）患儿的母亲所经历的挑战。
在一项定性研究中，通过访谈对赞比亚恩多拉地区16名方便抽样的脑瘫患儿母亲的经历进行了探索。对回答进行了主题分析。所有必要的伦理考量均得到维护。
母亲们经历了社会孤立和婚姻问题，以及来自家人、朋友、社区成员和医护人员的负面态度。由于缺乏人行道、坡道、正常运行的电梯和狭小的室内空间，物理环境造成了通行困难。
脑瘫患儿的母亲因缺乏家人、社区成员和医疗服务提供者的支持而感到社会孤立。他人对母亲的态度加剧了这种社会孤立；人们认为母亲应对孩子的状况负责。由于孩子患有脑瘫，母亲们还经历了婚姻问题。
