Department of Physiotherapy, Bayero University Kano, PMB 3011, Gwarzo road, Kano, Nigeria.
Department of Physiotherapy, Aminu Kano Teaching Hospital, Kano, Nigeria.
BMC Health Serv Res. 2020 Jul 6;20(1):615. doi: 10.1186/s12913-020-05487-w.
Cerebral Palsy (CP) refers to the permanent disorders involving postural and movement control as a result of injury to the developing brain. As a result of impairment in postural and movement control, children with CP usually have problems in carrying out activities of daily living (ADL). This makes them dependent on help from their caregivers. Thus, for effective rehabilitation of children with CP, active participation of their caregivers is important. This study seeks to explore the facilitators and barriers of active participation of caregivers in the rehabilitation of children with CP in Kano, Nigeria.
The study design used was qualitative in-depth interview. The participants were caregivers of children with CP at Hasiya Bayero Paediatric Specialists Hospital, Kano. The caregivers were interviewed face-to-face, and their responses were audio-recorded with a tape recorder, supplemented with note taking. The data generated was analyzed using constant comparative analysis.
Forty young caregivers (mean age, 27.17 ± 4.46 years) participated in the study. They expressed encouragement from the therapist managing the child, family support, empathy, improvement in the conditions of other children with CP, cooperation of the child during home programs family support and improvement in the child's condition as factors that facilitate their active participation in the rehabilitation of the children. However, they mentioned occupation, financial resources and the number of children the caregiver has are the barriers to their active participation in the rehabilitation of the children.
Both the facilitators and barriers of active participation of caregivers in the rehabilitation of children with CP need to be recognized in order to help caregivers reinforce or overcome them respectively. In addition, economically sustainable and accessible rehabilitation services are needed for all children with CP. Similarly, sharing caregiving rehabilitation tasks amongst family members could facilitate caregiver active participation.
脑瘫（CP）是指由于发育中大脑损伤而导致的姿势和运动控制的永久性障碍。由于姿势和运动控制受损，脑瘫儿童在进行日常生活活动（ADL）时通常会遇到问题。这使他们依赖于照顾者的帮助。因此，为了对脑瘫儿童进行有效的康复，照顾者的积极参与非常重要。本研究旨在探讨尼日利亚卡诺地区照顾者积极参与脑瘫儿童康复的促进因素和障碍。
研究设计采用定性深入访谈。参与者是哈西亚贝罗儿科专家医院脑瘫儿童的照顾者。照顾者进行面对面访谈，并使用录音机录制他们的回答，辅以笔记。使用恒定比较分析对生成的数据进行分析。
40 名年轻的照顾者（平均年龄 27.17 ± 4.46 岁）参与了研究。他们表示，治疗师管理孩子、家庭支持、同理心、其他脑瘫儿童状况的改善、孩子在家庭计划期间的合作以及孩子状况的改善都有助于他们积极参与孩子的康复。然而，他们提到职业、经济资源和照顾者的孩子数量是他们积极参与孩子康复的障碍。
为了帮助照顾者加强或克服这些障碍，需要认识到照顾者积极参与脑瘫儿童康复的促进因素和障碍。此外，需要为所有脑瘫儿童提供经济可持续和可获得的康复服务。同样，家庭成员之间分担照顾和康复任务可以促进照顾者的积极参与。
