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1
Social Inequalities in Palliative Care for Cancer Patients in the United States: A Structured Review.美国癌症患者姑息治疗中的社会不平等:一项结构化综述。
Semin Oncol Nurs. 2018 Aug;34(3):303-315. doi: 10.1016/j.soncn.2018.06.011. Epub 2018 Aug 23.
2
Closing the Gap on Pediatric Palliative Oncology Disparities.缩小儿科姑息肿瘤学差异
Semin Oncol Nurs. 2018 Aug;34(3):294-302. doi: 10.1016/j.soncn.2018.06.010. Epub 2018 Aug 10.
3
Integration of Palliative Care and Oncology Nursing.姑息治疗与肿瘤护理的整合
Semin Oncol Nurs. 2018 Aug;34(3):192-201. doi: 10.1016/j.soncn.2018.06.001. Epub 2018 Aug 16.
4
Evidence-based Palliative Care Approaches to Non-pain Physical Symptom Management in Cancer Patients.癌症患者非疼痛性躯体症状管理的循证姑息治疗方法
Semin Oncol Nurs. 2018 Aug;34(3):227-240. doi: 10.1016/j.soncn.2018.06.004. Epub 2018 Aug 14.
5
Evidence-based Management of Cancer Pain.癌症疼痛的循证管理
Semin Oncol Nurs. 2018 Aug;34(3):215-226. doi: 10.1016/j.soncn.2018.06.003. Epub 2018 Aug 10.
6
Advance Care Planning and End-of-Life Decision Making for Patients with Cancer.癌症患者的预先护理计划与临终决策
Semin Oncol Nurs. 2018 Aug;34(3):316-326. doi: 10.1016/j.soncn.2018.06.012. Epub 2018 Aug 9.
7
Emerging Models of Providing Oncology Palliative Care.提供肿瘤姑息治疗的新兴模式。
Semin Oncol Nurs. 2018 Aug;34(3):202-214. doi: 10.1016/j.soncn.2018.06.002. Epub 2018 Aug 9.
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Perspectives in International Palliative Care.国际姑息治疗的视角
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Integrating Family Caregivers into Palliative Oncology Care Using the Self- and Family Management Approach.采用自我与家庭管理方法将家庭照顾者纳入姑息肿瘤护理
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Semin Oncol Nurs. 2018 Aug;34(3):264-273. doi: 10.1016/j.soncn.2018.06.007. Epub 2018 Aug 9.

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Cancer Med. 2024 Sep;13(17):e70160. doi: 10.1002/cam4.70160.
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Making end-of-life health disparities in the U.S. visible through family bereavement narratives.通过家庭丧亲叙事揭示美国临终阶段的健康差异。
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Expectations and barriers to the utilization of specialist palliative care services among persons living with cancer in Ghana: an exploratory qualitative study.加纳癌症患者对专科姑息治疗服务的期望与利用障碍:一项探索性定性研究
Palliat Care Soc Pract. 2023 Aug 28;17:26323524231193042. doi: 10.1177/26323524231193042. eCollection 2023.
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Improving access to palliative care for people experiencing socioeconomic inequities: findings from a community-based pilot research study.改善处于社会经济劣势人群获得姑息治疗的机会:基于社区的试点研究结果。
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Intolerance of uncertainty, experiential avoidance, and trust in physician: a moderated mediation analysis of emotional distress in advanced cancer.不确定性容忍度、体验回避与对医生的信任:晚期癌症患者情绪困扰的中介调节分析。
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J Clin Oncol. 2023 Feb 20;41(6):1189-1192. doi: 10.1200/JCO.22.00838. Epub 2022 Sep 14.
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Palliative Care Use in Advanced Cancer in the Garden State.新泽西州晚期癌症患者的姑息治疗使用情况。
Cancer Nurs. 2023;46(4):E253-E260. doi: 10.1097/NCC.0000000000001105. Epub 2023 Feb 7.
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Adding telephone follow-up can improve representativeness of surveys of seriously ill people.增加电话随访可以提高对重症患者调查的代表性。
J Am Geriatr Soc. 2022 Jun;70(6):1870-1873. doi: 10.1111/jgs.17711. Epub 2022 Feb 28.

本文引用的文献

1
Palliative care for adolescents and young adults with cancer.为患有癌症的青少年和青年提供姑息治疗。
Clin Oncol Adolesc Young Adults. 2013;2013(3):41-48. doi: 10.2147/COAYA.S29757. Epub 2013 Mar 24.
2
Current Best Practices for Sexual and Gender Minorities in Hospice and Palliative Care Settings.姑息治疗和临终关怀环境中针对性行为和性别少数群体的现行最佳实践。
J Pain Symptom Manage. 2018 May;55(5):1420-1427. doi: 10.1016/j.jpainsymman.2017.12.479. Epub 2017 Dec 27.
3
End-of-Life Preparations among Lesbian, Gay, Bisexual, and Transgender People: Integrative Review of Prevalent Behaviors.女同性恋、男同性恋、双性恋和跨性别者的临终准备:对普遍行为的综合回顾
J Soc Work End Life Palliat Care. 2017 Oct-Dec;13(4):284-301. doi: 10.1080/15524256.2017.1387214.
4
LGBTQ-Inclusive hospice and palliative care: A practical guide to transforming professional practice.包含LGBTQ群体的临终关怀与姑息治疗:转变专业实践的实用指南。
J Psychosoc Oncol. 2018 Jan-Feb;36(1):134-136. doi: 10.1080/07347332.2017.1379047. Epub 2017 Nov 3.
5
The impact of specialized palliative care on cancer patients' health-related quality of life: a systematic review and meta-analysis.专科姑息治疗对癌症患者健康相关生活质量的影响:一项系统评价与荟萃分析。
Support Care Cancer. 2018 Jan;26(1):61-79. doi: 10.1007/s00520-017-3895-1. Epub 2017 Sep 20.
6
Charting the Future of Cancer Health Disparities Research: A Position Statement From the American Association for Cancer Research, the American Cancer Society, the American Society of Clinical Oncology, and the National Cancer Institute.绘制癌症健康差异研究的未来:美国癌症研究协会、美国癌症协会、美国临床肿瘤学会和美国国立癌症研究所的立场声明。
J Clin Oncol. 2017 Sep 10;35(26):3075-3082. doi: 10.1200/JCO.2017.73.6546. Epub 2017 Jul 24.
7
A Community-Developed, Culturally-Based Palliative Care Program for African American and White Rural Elders with a Life-Limiting Illness: A Program By The Community for the Community.一项由社区为患有危及生命疾病的非裔美国和白人农村老年人开发的、基于文化的姑息治疗项目:社区为社区开展的项目。
Narrat Inq Bioeth. 2017;7(1):36-40. doi: 10.1353/nib.2017.0013.
8
End-of-life care for homeless people: A qualitative analysis exploring the challenges to access and provision of palliative care.无家可归者的临终关怀:探索获得姑息治疗和提供姑息治疗的挑战的定性分析。
Palliat Med. 2018 Jan;32(1):36-45. doi: 10.1177/0269216317717101. Epub 2017 Jul 3.
9
Toward Palliative Care for All Patients With Advanced Cancer.为所有晚期癌症患者提供姑息治疗。
JAMA Oncol. 2017 Nov 1;3(11):1459-1460. doi: 10.1001/jamaoncol.2017.1059.
10
American Society of Clinical Oncology Position Statement: Strategies for Reducing Cancer Health Disparities Among Sexual and Gender Minority Populations.美国临床肿瘤学会立场声明:减少性少数和性别少数群体癌症健康差距的策略。
J Clin Oncol. 2017 Jul 1;35(19):2203-2208. doi: 10.1200/JCO.2016.72.0441. Epub 2017 Apr 3.

美国癌症患者姑息治疗中的社会不平等:一项结构化综述。

Social Inequalities in Palliative Care for Cancer Patients in the United States: A Structured Review.

作者信息

Elk Ronit, Felder Tisha M, Cayir Ebru, Samuel Cleo A

机构信息

Ronit Elk, PhD: Research Associate Professor, Co-Director, Palliative Care Initiative, College of Nursing, University of South Carolina, Columbia, SC. Tisha M. Felder, PhD, MSW: Assistant Professor, Director, Diversity, Equity and Inclusion, College of Nursing, Cancer Prevention & Control Program, Arnold School of Public Health, University of South Carolina, Columbia, SC. Ebru Cayir, MD: PhD Candidate, Department of Health Promotion, Education and Behavior, Arnold School of Public Health, University of South Carolina, Columbia, SC. Cleo A. Samuel, PhD: Assistant Professor, Department of Health Policy and Management, Gillings School of Global Public Health, University of North Carolina at Chapel Hill, NC..

Ronit Elk, PhD: Research Associate Professor, Co-Director, Palliative Care Initiative, College of Nursing, University of South Carolina, Columbia, SC. Tisha M. Felder, PhD, MSW: Assistant Professor, Director, Diversity, Equity and Inclusion, College of Nursing, Cancer Prevention & Control Program, Arnold School of Public Health, University of South Carolina, Columbia, SC. Ebru Cayir, MD: PhD Candidate, Department of Health Promotion, Education and Behavior, Arnold School of Public Health, University of South Carolina, Columbia, SC. Cleo A. Samuel, PhD: Assistant Professor, Department of Health Policy and Management, Gillings School of Global Public Health, University of North Carolina at Chapel Hill, NC.

出版信息

Semin Oncol Nurs. 2018 Aug;34(3):303-315. doi: 10.1016/j.soncn.2018.06.011. Epub 2018 Aug 23.

DOI:10.1016/j.soncn.2018.06.011
PMID:30146346
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7233309/
Abstract

OBJECTIVES

To identify patterns of access to and use or provision of palliative care services in medically underserved and vulnerable groups diagnosed with cancer.

DATA SOURCES

Google Scholar, PubMed, MEDLINE, and Web of Science were searched to identify peer-reviewed studies that described palliative care in medically underserved or vulnerable populations diagnosed with cancer.

CONCLUSION

Disparities in both access and referral to palliative care are evident in many underserved groups. There is evidence that some groups received poorer quality of such care.

IMPLICATIONS FOR NURSING PRACTICE

Achieving health equity in access to and receipt of quality palliative care requires prioritization of this area in clinical practice and in research funding.

摘要

目的

确定被诊断患有癌症的医疗服务不足和弱势群体获得、使用或提供姑息治疗服务的模式。

数据来源

检索谷歌学术、PubMed、MEDLINE和科学网,以识别描述被诊断患有癌症的医疗服务不足或弱势群体姑息治疗的同行评审研究。

结论

在许多服务不足的群体中,姑息治疗的获得和转诊方面的差异很明显。有证据表明,一些群体获得的此类护理质量较差。

对护理实践的启示

在获得和接受高质量姑息治疗方面实现健康公平,需要在临床实践和研究资金中优先考虑这一领域。