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数字健康干预措施对癌症患者生活的帮助:一项参与者参与度和心理社会影响的系统评价。

Digital health interventions to help living with cancer: A systematic review of participants' engagement and psychosocial effects.

机构信息

Laboratory: Social Psychology Research Group [Groupe de Recherche en Psychologie Sociale] (EA 4163), Psychology Institute [Institut de Psychologie]-Lyon 2 University [Université Lyon 2], Bron, France.

Laboratory: Information and Communication Sciences Lyon Research Team [Équipe de Recherche de Lyon en Sciences de l'Information et de la Communication] (EA 4147), Institute of Human Sciences [Institut des Sciences de l'Homme]-Lyon University [Université de Lyon], Lyon, France.

出版信息

Psychooncology. 2018 Dec;27(12):2677-2686. doi: 10.1002/pon.4867. Epub 2018 Sep 24.

Abstract

OBJECTIVE

Digital health interventions (DI) open the possibility for cancer patients and survivors to manage the disease and its side effects when they return home after treatment. This study aims to highlight the components of DI, investigate patient engagement with DI, and explore the effects of DI on psychosocial variables.

METHODS

In September 2017, we performed a systematic review of studies focusing on DI which target cancer patients or survivors.

RESULTS

A total of 29 articles (24 studies) were reviewed. There was considerable heterogeneity in study methods, in outcome definitions, in measures for engagement with DI and in psychosocial variables assessed. Results from the studies showed a high level of engagement. Self-efficacy, psychological symptoms, and quality of life were the most commonly assessed psychosocial variables. However, results for the effect of DI on psychosocial variables were inconsistent. Regarding pain management, results were in line with what one would expect.

CONCLUSIONS

The present review showed that despite the heterogeneity in the studies assessed and inconsistent results, DI may constitute an excellent means to help cancer patients and survivors cope better with the disease and with treatment side effects, as they can improve self-management and wellbeing. In order to acquire a greater understanding of the mechanisms underlying cancer patients'/survivors' psychological and behavioral changes in terms of adopting DI, direct comparison between studies is needed. However, this can only come about if methodological and conceptual standardization of DI is implemented.

摘要

目的

数字健康干预(DI)为癌症患者和幸存者提供了在治疗后返回家中时管理疾病及其副作用的可能性。本研究旨在强调 DI 的组成部分,调查患者对 DI 的参与情况,并探讨 DI 对心理社会变量的影响。

方法

2017 年 9 月,我们对针对癌症患者或幸存者的 DI 进行了系统评价。

结果

共审查了 29 篇文章(24 项研究)。研究方法、结局定义、DI 参与度的衡量标准以及评估的心理社会变量存在相当大的异质性。研究结果表明,参与度很高。自我效能感、心理症状和生活质量是最常评估的心理社会变量。然而,DI 对心理社会变量影响的结果不一致。关于疼痛管理,结果与预期相符。

结论

本综述表明,尽管评估的研究存在异质性且结果不一致,但 DI 可能是帮助癌症患者和幸存者更好地应对疾病和治疗副作用的极好方法,因为它可以改善自我管理和幸福感。为了更深入地了解癌症患者/幸存者在采用 DI 方面的心理和行为变化的机制,需要对研究进行直接比较。然而,如果实施 DI 的方法学和概念标准化,这才能实现。

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