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改善多发性硬化症患者自我效能的随机对照试验:针对社会孤立患者的社区重新融入(CRISP)项目。

Randomized Controlled Trial to Improve Self-Efficacy in People With Multiple Sclerosis: The Community Reintegration for Socially Isolated Patients (CRISP) Program.

作者信息

Kalina J Tamar, Hinojosa Jim, Strober Lauren, Bacon Joshua, Donnelly Seamus, Goverover Yael

机构信息

J. Tamar Kalina, PhD, MSCS, OTR/L, is Medical Science Liaison, Biogen Idec, Weston, MA. At the time of the study, she was Director of Rehabilitation Services, Senior Manager Rehabilitation and Research, and Assistant Professor in Neurology, New York University, New York, NY;

Jim Hinojosa, PhD, OT, FAOTA, is Professor Emeritus, New York University, New York, NY.

出版信息

Am J Occup Ther. 2018 Sep/Oct;72(5):7205205030p1-7205205030p8. doi: 10.5014/ajot.2018.026864.

DOI:10.5014/ajot.2018.026864
PMID:30157015
Abstract

OBJECTIVE

We examined the efficacy of a 12-wk educational socialization program, Community Reintegration for Socially Isolated Patients (CRISP), in improving self-efficacy for people with multiple sclerosis (MS). We also examined whether participants in the experimental group with increased self-efficacy experienced reduced loneliness and depression.

METHOD

This randomized controlled group design included 91 participants with MS (experimental group, n = 51; control group, n = 40). Participants were between ages 20 and 68 yr, and the majority experienced a relapsing-remitting MS course (86%) and mild to moderate disability. Participants completed baseline and posttreatment assessments, including questionnaires assessing self-efficacy, loneliness, and depression.

RESULTS

Experimental group participants significantly improved in self-efficacy compared with control group participants. Experimental group participants who demonstrated improved self-efficacy reported reduced perceptions of loneliness but not depressive symptoms.

CONCLUSION

CRISP is a promising intervention to improve self-efficacy for people with MS. However, results need to be treated with caution given the study's limitations.

摘要

目的

我们研究了一项为期12周的教育社交项目——“社区孤立患者重新融入计划”(CRISP)对改善多发性硬化症(MS)患者自我效能感的效果。我们还研究了实验组中自我效能感提高的参与者是否减少了孤独感和抑郁情绪。

方法

这项随机对照试验设计纳入了91名MS患者(实验组,n = 51;对照组,n = 40)。参与者年龄在20至68岁之间,大多数经历复发缓解型MS病程(86%),且有轻度至中度残疾。参与者完成了基线和治疗后评估,包括评估自我效能感、孤独感和抑郁情绪的问卷。

结果

与对照组参与者相比,实验组参与者的自我效能感显著提高。自我效能感有所提高的实验组参与者报告称孤独感有所降低,但抑郁症状没有减轻。

结论

CRISP是一种有前景的干预措施,可提高MS患者的自我效能感。然而,鉴于该研究的局限性,结果需谨慎对待。

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