Matsumoto Monica M, Dajani Rana, Matthews Kirstin R W
Pritzker School of Medicine, University of Chicago Medicine, Chicago, Illinois.
Center for Health and Bioscience, Baker Institute for Public Policy, Rice University, Houston, Texas.
Transfusion. 2018 Aug;58(8):1958-1963. doi: 10.1111/trf.14787. Epub 2018 Sep 1.
Private cord blood (CB) banking is more widespread than public banking in Jordan, contributing to misinformation and unequal access to resources. This study elucidates unique perspectives of women in Jordan toward CB banking for the purpose of national and international policymaking, ethics, and education.
The authors developed and disseminated a questionnaire to women in maternity outpatient clinic waiting rooms in five different hospitals in Jordan. A total of 899 surveys were collected with 100% return rate: 464 surveys from private hospitals and 435 from public ones. Data were reported as frequency distributions, chi-square and Fisher's exact test statistics, and odds ratios.
Patient demographics, self-reported knowledge, and opinions about CB banking differed significantly between women at private versus public hospitals. Women at private hospitals had higher levels of awareness and communication with a health care professional about CB banking, which is associated with more positive viewpoints on CB banking and a self-reported higher likelihood of participating in CB banking in the future. Furthermore, religious approval and father-only consent for CB banking must be considered as unique factors in CB storage in Jordan.
This analysis aids in identifying discrepancies in knowledge, resources, and communication, as well as unique population preferences. Comprehensive culturally attuned educational campaigns for patients and physicians should be a national priority to ensure ethical practice, informed decision making, and sustainable programs before the opening of Jordan's first public CB bank in 2017.
在约旦，自体脐带血储存比公共脐带血储存更为普遍，这导致了信息误导和资源获取的不平等。本研究旨在阐明约旦女性对脐带血储存的独特观点，以用于国家和国际政策制定、伦理及教育。
作者设计并向约旦五家不同医院产科门诊候诊室的女性发放了问卷。共收集到899份调查问卷，回收率达100%：其中464份来自私立医院，435份来自公立医院。数据以频率分布、卡方检验和费舍尔精确检验统计量以及比值比的形式呈现。
私立医院和公立医院的女性在患者人口统计学特征、自我报告的关于脐带血储存的知识及观点方面存在显著差异。私立医院的女性对脐带血储存的知晓程度更高，并且与医疗保健专业人员就脐带血储存进行的沟通更多，这与对脐带血储存更积极的看法以及自我报告的未来参与脐带血储存的更高可能性相关。此外，宗教认可和仅需父亲同意进行脐带血储存必须被视为约旦脐带血储存中的独特因素。
该分析有助于识别知识、资源和沟通方面的差异以及独特的人群偏好。在2017年约旦第一家公共脐带血库开业之前，针对患者和医生开展全面的、符合文化背景的教育活动应成为国家优先事项，以确保道德实践、明智决策和可持续项目。
