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澳大利亚孕妇关于脐带血捐献和储存的知识、信念及决策:一项基于人群的调查。

Knowledge, beliefs, and decisions of pregnant Australian women concerning donation and storage of umbilical cord blood: a population-based survey.

作者信息

Jordens Christopher F C, Kerridge Ian H, Stewart Cameron L, O'Brien Tracey A, Samuel Gabrielle, Porter Maree, O'Connor Michelle A C, Nassar Natasha

机构信息

Centre for Values, Ethics and the Law in Medicine, School of Public Health, The University of Sydney, Australia.

出版信息

Birth. 2014 Dec;41(4):360-6. doi: 10.1111/birt.12121. Epub 2014 Jul 2.

DOI:10.1111/birt.12121
PMID:24988997
Abstract

BACKGROUND

Many women giving birth in Australian hospitals can choose to donate their child's umbilical cord blood to a public cord blood bank or pay to store it privately. We conducted a survey to determine the proportion and characteristics of pregnant women who are aware of umbilical cord blood (UCB) banking and who have considered and decided about this option. The survey also sought to ascertain information sources, knowledge, and beliefs about UCB banking, and the effect of basic information about UCB on decisions.

METHODS

Researchers and hospital maternity staff distributed a survey with basic information about UCB banking to 1,873 women of at least 24 weeks' gestation who were attending antenatal classes and hospital clinics in 14 public and private maternity hospitals in New South Wales.

RESULTS

Most respondents (70.7%) were aware of UCB banking. Their main information sources were leaflets from hospital clinics, print media, antenatal classes, TV, radio, friends, and relatives. Knowledge about UCB banking was patchy, and respondents overestimated the likelihood their child would need or benefit from UCB. Women who were undecided about UCB banking were younger, less educated, or from ethnic or rural backgrounds. After providing basic information about UCB banking, the proportion of respondents who indicated they had decided whether or not to donate or store UCB more than doubled from 30.0 to 67.7 percent.

CONCLUSIONS

Basic information for parents about UCB banking can affect planned decisions about UCB banking. Information should be accurate and balanced, should counter misconceptions, and should target specific groups.

摘要

背景

许多在澳大利亚医院分娩的女性可以选择将其孩子的脐带血捐赠给公共脐带血库,或者付费进行私人储存。我们开展了一项调查,以确定知晓脐带血储存并已考虑及决定是否采取该措施的孕妇的比例和特征。该调查还旨在确定有关脐带血储存的信息来源、知识和观念,以及关于脐带血的基本信息对决策的影响。

方法

研究人员和医院产科工作人员向新南威尔士州14家公立和私立产科医院参加产前课程及医院门诊的1873名妊娠至少24周的女性发放了一份包含脐带血储存基本信息的调查问卷。

结果

大多数受访者(70.7%)知晓脐带血储存。她们的主要信息来源是医院门诊的宣传册、平面媒体、产前课程、电视、广播、朋友及亲属。关于脐带血储存的知识并不全面,受访者高估了其孩子需要或受益于脐带血的可能性。对脐带血储存犹豫不决的女性年龄更小、受教育程度更低,或来自少数民族或农村背景。在提供了关于脐带血储存的基本信息后,表示已决定是否捐赠或储存脐带血的受访者比例从30.0%增至67.7%,增加了一倍多。

结论

向父母提供关于脐带血储存的基本信息会影响其关于脐带血储存的既定决策。信息应准确、平衡,应消除误解,并应针对特定群体。

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