Div.of Rheumatology, Department of Medicine; Department of Community Health Sciences University of Calgary, Cumming School of Medicine, Alberta; Arthritis Research Canada; and McCaig Inst. for Bone and Joint Health, University of Calgary, Alberta, Canada.
Division of Rheumatology, Department of Medicine, University of Calgary, Cumming School of Medicine, Alberta, Canada.
Clin Exp Rheumatol. 2019 May-Jun;37(3):385-392. Epub 2018 Aug 29.
To develop a web-based tool (Rheum4U) to capture clinically meaningful data to direct treatment. Rheum4U integrates longitudinal clinical data capture of rheumatoid arthritis (RA) disease activity measures and patient-reported outcomes measures (PROMs). This study tests the feasibility, acceptability and efficiency of Rheum4U among patients and healthcare providers.
Rheum4U was developed in two phases: P1 design and development; and P2 pilot testing. P1: A working group of rheumatologists and researchers (n=13) performed a prioritisation exercise to determine data elements to be included in the platform. The specifications were finalised and supplied to the platform developer. Alpha testing was performed to correct initial software bugs. 18 testers (physicians, nurses and recruited non-patient lay-testers) beta tested Rheum4U for usability. P2: Rheum4U was piloted in 2 rheumatology clinics and evaluated for feasibility, efficiency and acceptability using interviews, observation and questionnaires with patients and healthcare providers.
110 RA patients, 9 rheumatologists and 9 allied health providers participated in the pilot. Mean patient age was 53 years and 74% were female. The majority (86%) were satisfied or very satisfied with online data entry and 79% preferred it to paper entry. Healthcare providers found Rheum4U easy and clear to use (90%), and they perceived that it improved their job performance (91%). Completeness and easy availability of the patient information improved clinic efficiency.
Rheum4U highlights the benefits of a web-based tool for clinical care, quality improvement and research in the clinic and this study provides valuable information to inform full platform implementation.
开发一个基于网络的工具（Rheum4U），以捕捉有临床意义的数据来指导治疗。Rheum4U 整合了类风湿关节炎（RA）疾病活动指标和患者报告结局指标（PROMs）的纵向临床数据采集。本研究在患者和医疗保健提供者中测试了 Rheum4U 的可行性、可接受性和效率。
Rheum4U 分两个阶段开发：P1 设计和开发；P2 试点测试。P1：一组风湿病学家和研究人员（n=13）进行了一项优先级排序练习，以确定要包含在平台中的数据元素。最终确定了规格，并提供给平台开发人员。进行了 alpha 测试以纠正初始软件错误。18 名测试人员（医生、护士和招募的非患者测试人员）对 Rheum4U 的可用性进行了 beta 测试。P2：在 2 个风湿病诊所试用了 Rheum4U，通过对患者和医疗保健提供者的访谈、观察和问卷调查来评估其可行性、效率和可接受性。
110 名 RA 患者、9 名风湿病学家和 9 名联合健康提供者参与了试点。患者的平均年龄为 53 岁，74%为女性。大多数（86%）对在线数据录入感到满意或非常满意，79%的人更喜欢在线录入而不是纸质录入。医疗保健提供者认为 Rheum4U 使用方便、清晰（90%），并且他们认为这提高了他们的工作绩效（91%）。患者信息的完整性和易于获取提高了诊所的效率。
Rheum4U 强调了基于网络的工具在临床护理、质量改进和研究方面的优势，本研究提供了有价值的信息，为全面实施平台提供了依据。
