May Thomas, Lee Richard M, Evans James P
Narrat Inq Bioeth. 2018;8(2):103-106. doi: 10.1353/nib.2018.0036.
An individual's genetic-relative family health history can lead to the identification of high-risk individuals and through this can result in highly effective disease prevention for those at risk. In this symposium, readers will see the very different lived experiences of adopted persons whose access to genetic-relative family health history is limited. All share a common experience of facing obstacles within the U.S. healthcare system related to lacking family health history. Genomic technologies now offer tremendous promise to fill gaps in access to this vital health information.
个人的基因相关家族健康史有助于识别高危个体，从而为这些有风险的人带来高效的疾病预防。在本次研讨会上，读者将看到养子女截然不同的生活经历，他们获取基因相关家族健康史的机会有限。所有人都有一个共同的经历，即在与缺乏家族健康史相关的美国医疗体系中面临障碍。基因组技术如今为填补获取这一重要健康信息方面的空白带来了巨大希望。
