• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

家族健康史:对领养者的医疗护理和自我认知至关重要。

Family Health History: Invaluable for Adoptees' Medical Care and Self Identity.

作者信息

Lord Pat C

出版信息

Narrat Inq Bioeth. 2018;8(2):143-149. doi: 10.1353/nib.2018.0052.

DOI:10.1353/nib.2018.0052
PMID:30220698
Abstract

Adoption is one of several ways to have a family. Adoption is unique in that it involves birth parents, adoptive parents, and adoptees. For many adoptees, there is no information about their birth family health history which can create healthcare challenges. In these narratives, many adoptees discuss genetic testing as a substitution for their birth family health history which is one common theme in these stories. However, two narratives illustrate the value of an on-going family health history with birth families to identify health risks that are not identified in genetic testing but evolve over time. Another theme in these narratives is the adoptees' feeling of loss and their search for self-identity. For some adoptees this sense of loss never goes away and leaves them with an incomplete identity. Society, but especially adoptive parents, should help adoptees' in this search to help them cope with the sense of loss and incompleteness adoption can create and form a healthy self-identity.

摘要

收养是组建家庭的几种方式之一。收养的独特之处在于它涉及亲生父母、养父母和被收养者。对于许多被收养者来说,他们没有关于亲生家庭健康史的信息,这可能会带来医疗保健方面的挑战。在这些叙述中,许多被收养者将基因检测视为替代亲生家庭健康史的方式,这是这些故事中的一个共同主题。然而,有两个叙述说明了与亲生家庭保持持续的家庭健康史对于识别基因检测中未发现但会随时间演变的健康风险的价值。这些叙述中的另一个主题是被收养者的失落感以及他们对自我身份的探寻。对一些被收养者来说,这种失落感永远不会消失,使他们的身份不完整。社会,尤其是养父母,应该在这种探寻中帮助被收养者,以帮助他们应对收养可能带来的失落感和不完整感,并形成健康的自我身份认同。

相似文献

1
Family Health History: Invaluable for Adoptees' Medical Care and Self Identity.家族健康史:对领养者的医疗护理和自我认知至关重要。
Narrat Inq Bioeth. 2018;8(2):143-149. doi: 10.1353/nib.2018.0052.
2
Adoptees' Pursuit of Genomic Testing to Fill Gaps in Family Health History and Reduce Healthcare Disparity.被收养者寻求基因检测以填补家族健康史空白并减少医疗保健差异。
Narrat Inq Bioeth. 2018;8(2):131-135. doi: 10.1353/nib.2018.0050.
3
Reunions between adoptees and birth parents: the adoptees' experience.被收养者与亲生父母的团聚:被收养者的经历。
Soc Work. 1991 Jul;36(4):329-35.
4
Claiming What Is Rightfully Mine.
Narrat Inq Bioeth. 2018;8(2):137-141. doi: 10.1353/nib.2018.0051.
5
Shifting views and building bonds: Narratives of internationally adopted children about their dual culture.观念转变与建立联系:被国际收养儿童关于其双重文化的叙述
Transcult Psychiatry. 2018 Jun;55(3):405-427. doi: 10.1177/1363461518764250. Epub 2018 Apr 11.
6
Reinforcing Loss and Rendering Invisible: Adoptee Experience and the Structural Failings of Biomedicine.强化损失与使其隐形:被收养者的经历与生物医学的结构性缺陷
Narrat Inq Bioeth. 2018;8(2):151-156. doi: 10.1353/nib.2018.0053.
7
Adoptees' contact with birth parents in emerging adulthood: the role of adoption communication and attachment to adoptive parents.成年初期养子女与亲生父母的联系:收养沟通及与养父母依恋关系的作用。
Fam Process. 2014 Dec;53(4):656-71. doi: 10.1111/famp.12069. Epub 2014 Mar 19.
8
Does the amount of family history matter? Perspectives of adult adoptees.家族史的数量重要吗?成年被领养者的观点。
J Genet Couns. 2024 Jun;33(3):643-652. doi: 10.1002/jgc4.1770. Epub 2023 Aug 25.
9
Psychological correlates of interest in genetic testing among Korean American adoptees and their parents.韩裔美国家庭收养子女及其父母对基因检测的兴趣的心理相关性。
J Genet Couns. 2020 Jun;29(3):460-470. doi: 10.1002/jgc4.1237. Epub 2020 Mar 3.
10
The role of siblings in adoption outcomes and experiences from adolescence to emerging adulthood.兄弟姐妹在从青少年期到成年初期的收养结果及经历中所起的作用。
J Fam Psychol. 2016 Apr;30(3):386-96. doi: 10.1037/fam0000173. Epub 2015 Dec 14.

引用本文的文献

1
Misattributed paternity discovery: A critique of medical organizations' recommendations.错误认定亲子关系的发现:对医学组织建议的批判
Am J Hum Genet. 2025 Mar 6;112(3):492-507. doi: 10.1016/j.ajhg.2025.01.006. Epub 2025 Feb 3.
2
Adoptees' views and experiences of direct-to-consumer (DTC) genomic testing: an exploratory interview study from the UK.领养者对直接面向消费者(DTC)基因检测的看法与体验:一项来自英国的探索性访谈研究
J Community Genet. 2023 Apr;14(2):149-162. doi: 10.1007/s12687-022-00622-y. Epub 2022 Nov 29.