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Claiming What Is Rightfully Mine.

作者信息

Grotevant Harold D

出版信息

Narrat Inq Bioeth. 2018;8(2):137-141. doi: 10.1353/nib.2018.0051.

DOI:10.1353/nib.2018.0051
PMID:30220697
Abstract

Although adopted persons did not choose to be adopted, their life-long task is to come to terms with its meaning, which includes absence of important information about their family health history. Problematic encounters with health care professionals inspired contributors' narratives recognizing compelling need for accurate information about themselves as well as access to empathic and resourceful medical professionals. A key issue pervading the narratives was loss: loss of birth name and identity, loss of birth relatives and history, and often loss of birth culture. In response to this deeply felt sense of loss, many authors expressed the need to claim what they believe to be rightfully theirs, namely, information about their own history. Policy and practice recommendations regarding training of health care professionals as well as access to original birth records and ongoing family health information are discussed.

摘要

相似文献

1
Claiming What Is Rightfully Mine.
Narrat Inq Bioeth. 2018;8(2):137-141. doi: 10.1353/nib.2018.0051.
2
Family Health History: Invaluable for Adoptees' Medical Care and Self Identity.家族健康史:对领养者的医疗护理和自我认知至关重要。
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Adoptees' Pursuit of Genomic Testing to Fill Gaps in Family Health History and Reduce Healthcare Disparity.被收养者寻求基因检测以填补家族健康史空白并减少医疗保健差异。
Narrat Inq Bioeth. 2018;8(2):131-135. doi: 10.1353/nib.2018.0050.
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Healthcare Challenges Faced by Adopted Persons Lacking Family Health History Information.缺乏家族健康史信息的收养者所面临的医疗保健挑战。
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A Personal Reflection on the Medical History Questions facing Adopted Persons.对被收养者面临的病史问题的个人思考。
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Reinforcing Loss and Rendering Invisible: Adoptee Experience and the Structural Failings of Biomedicine.强化损失与使其隐形:被收养者的经历与生物医学的结构性缺陷
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